Pancreatic Cancer Support Group

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Comments (494)

Hi, Sherry, Thanks so much for your response! I was thinking I might ask about enzymes....

https://connect.mayoclinic.org/comment/817499/

Discussion: What's recovery after distal pancreatectomy and splenectomy like?

Support Group: Pancreatic Cancer

Posted: Feb 26, 2023

There are patient assistance programs for the Rx brands of pancrealipase. They are all close in...

https://connect.mayoclinic.org/comment/806355/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 4, 2023

Higher concentration of the enzymes. Much less $$ than Creon and ZenPep

https://connect.mayoclinic.org/comment/805060/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 1, 2023

Please don’t fear it. Especially if your doctor is well experienced with the lap equipment. As...

https://connect.mayoclinic.org/comment/803346/

Discussion: What's recovery after distal pancreatectomy and splenectomy like?

Support Group: Pancreatic Cancer

Posted: Jan 29, 2023

I was diagnosed November 16, 2022 when I developed jaundice. I had a stent, ERCP, and,...

https://connect.mayoclinic.org/comment/786141/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Dec 18, 2022

Hi, I read your story with interest. I had an MRCP in August that shows both...

https://connect.mayoclinic.org/comment/766225/

Discussion: MRI MRCP - Cyst (IPMN) - Newbie

Support Group: Pancreatic Cancer

Posted: Oct 27, 2022

I was told my pancreas not making enzymes. doctor ordered the very expense enzymes and I...

https://connect.mayoclinic.org/comment/678008/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 5, 2022

I see a lot of people who talk about needing Creon when they eat fats. Undigested...

https://connect.mayoclinic.org/comment/291994/

Discussion: Struggling to eat with pancreatic cancer: How do you manage?

Support Group: Pancreatic Cancer

Posted: Feb 8, 2020

it's been almost 2 years since my whipple, and am still trying to figure it out....

https://connect.mayoclinic.org/comment/291993/

Discussion: Struggling to eat with pancreatic cancer: How do you manage?

Support Group: Pancreatic Cancer

Posted: Feb 7, 2020

Yes thank you, I have read all of the posts and the one from @nogginquest provides...

https://connect.mayoclinic.org/comment/195033/

Discussion: Pancreatic Cancer Stage IV and in partial remission

Support Group: Pancreatic Cancer

Posted: Dec 2, 2018

I had a Whipple at Mayo Clinic nearly 12 years ago and have been on a...

https://connect.mayoclinic.org/comment/208576/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jul 14, 2018

@johnny1955 I thought about the enzymes. We have appt on Mon for integrative therapy and will...

https://connect.mayoclinic.org/comment/1488959/

Discussion: Did you use supplements or holistic approaches with traditional tx?

Support Group: Pancreatic Cancer

Posted: Jan 22 2:22pm

Hi Hugh, I am about 2.5 months past distal pancreatectomy with splenectomy. I have been lucky,...

https://connect.mayoclinic.org/comment/1482263/

Discussion: Anyone had both their pancreas and spleen removed?

Support Group: Pancreatic Cancer

Posted: Jan 14 1:39pm

My horse Tucker definitely got me through my chemo and radiation and subsequent whipple surgery. My...

https://connect.mayoclinic.org/comment/866765/

Discussion: What is it like after Whipple surgery plus 1 1/2 years?

Support Group: Pancreatic Cancer

Posted: May 25, 2023

Husband 4.5 years post pancreatectomy, with excision of the duodenum, pylorus, spleen, gallbladder and also has...

https://connect.mayoclinic.org/comment/1072741/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2024

Not sure if I am not doing this right. Replied tothis previously but dont see my...

https://connect.mayoclinic.org/comment/1052025/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Apr 16, 2024

A tumor in the head of the pancreas can affect the production and secretion of the...

https://connect.mayoclinic.org/comment/1044506/

Discussion: Anyone experiencing malabsorption?

Support Group: Pancreatic Cancer

Posted: Apr 3, 2024

Really just GI-stomach upset, upper abdominal discomfort, and some new pain on my right side under...

https://connect.mayoclinic.org/comment/1042448/

Discussion: Talked to hepatologist re: abnormal MRCP

Support Group: Pancreatic Cancer

Posted: Mar 29, 2024

Hi. My wife had a distal surgery in April 2022 for a grade 2b tumor in...

https://connect.mayoclinic.org/comment/1034755/

Discussion: Newly Diagnosed Pancreatic NET awaiting Distal Pancrectomy

Support Group: Pancreatic Cancer

Posted: Mar 16, 2024

Creon seems permanent with me. The CT scans have shown atrophic pancreas, I believe this means...

https://connect.mayoclinic.org/comment/987589/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2023

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