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Osteoporosis & Bone Health Support Group

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Discussions (131)
Recast infusion
I received a Reclast infusion, believing it would produce the least side effects of all the osteoporosis meds out there All I can say is...
Last active: Dec 23, 2024
N-Telopeptide Test vs DXA Test Results
I'm struggling to understand what my N-telopeptide urine results mean in relation to my DXA results. Does anyone have insight? My doctor is focused on...
Last active: Jan 24, 2023
CTX high but can't find reason
I had Dexa 2017 and was in osteopenia in spine and little in hips. In 2022 I went to satellite of my hosptial instead (...
Last active: Jul 13, 2023
Evenity follow up with Alendronate results so far
I am about 7 months into Alendronate weekly to lock in gains from Evenity completed October 2023 Evenity helped me attain a: 14% LS increase...
Last active: May 20 1:46pm
Severe osteoporosis at age 29. Is Calcichew and D3 enough?
Hi there, I am 29 years old and was recently diagnosed with severe osteoporosis at 28. My spine BMD is -4. I have hypogonadism and...
Last active: Jul 21, 2024
Hesitant to begin drug treatment for my osteoporosis
Hello! My first post here as a new member. I am an active 69 year old female who was diagnosed many years ago with osteopenia...
Last active: Aug 10 5:31pm
Which specialist is best-Rheumatologist, Endocrinology, or Physiology?
I am beginning this Osteoporosis journey. 2 yrs ago the Rheumatologist had some labwork done and a couple x-rays and said that Evenity would be...
Last active: Jun 20, 2023
No improvement in Dexascan after 11 months on Evenity
I'm scanning these posts and can't find results like mine. I'm a 57 year old marathon runner who had parathyroid disease diagnosed and surgery removing...
Last active: Jun 5 4:05pm
Just Diagnosed with Osteoporosis- Where to Start
I was very shocked at the diagnosis I received yesterday with a t-score of -5.4 on my left femeral neck. I hadn’t had a bone...
Last active: May 15, 2023
REMS confusion
I had the opportunity to receive a REMS while visiting family in Dallas, and I find the results puzzling. My most recent DEXA is from...
Last active: Mar 17, 2024
My Osteoporosis is leading to Broken Bones
Hi everyone. I haven't posted very much lately because I have been healing from a shattered ankle! I broke it in March, and had surgury...
Last active: Jan 4, 2024
Decision to Delay Prolia
A year ago I had my first Dexa scan which showed a -2.5 score in my lower spine, osteopenia in other areas. I had a...
Last active: Mar 31 6:06pm
List of questions for the MD - what do you wish you had asked?
I have an appt with an endocrinologist (my 3rd) on Wednesday. The first two docs were not very interested and the visits were perfunctory. The...
Last active: Jun 6, 2024
Newly diagnosed, requesting feedback on meds
First post and newly diagnosed. 66 year old female, fairly active not on any meds for any conditions except for NSAIDs PRN. I’ve been reading...
Last active: Jul 16 12:04pm
Alendronate Newbie
Hello everyone! I was so glad to discover this forum. I have a few questions about alendronate which I hope won't be too repetitive of...
Last active: 5 days ago
New member intro
Hi- I’m 64 years old and I’ve just been diagnosed with osteoporosis. Spine is the worst - T score -3.2. This was not a surprise....
Last active: Dec 4, 2023
Fosamax Feedback
Age 57, Last DEXA Oct 2023: Lumbar T-Score -2.7, Hip T-Score -1.7, Femoral Neck T-Score -1.8 My FRAX score adjusted for my Lumbar TScore Major...
Last active: Jan 26 9:27am
Interpreting CTX and P1NP Tests
Am I the only one who is frustrated with the mainstream healthcare system not being experienced in offering bone marker tests for those diagnosed with...
Last active: Jun 26 7:03am
Improvement on reduced dosage of Tymlos
The tl;dr: My dexa scan showed improvement despite the fact I was on a reduced Tymlos dosage. I started Tymlos last September. After being unable...
Last active: May 20 9:23am
Should I pursue a TBS score?
Hi all: my first post, although been lurking a while. What a terrific forum and kind group of people! I've read a few articles touting...
Last active: Jun 21 8:47am