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Discussions (669)
Alcohol Neuropathy???
Hello All, I just found this group and I am so thankful to have found this! I am so frustrated with our medical system here...
New Onset Pain - Neurologist suspects it is idiopathic SFN
I have had neuropathy symptoms for about 3 yrs. I've had two EMGs and Nerve Conduction Studies which are negative for large fiber neuropathy. My...
Autonomic and Peripherial neuropathy
I have never opened up in a forum before, and still feel uncomfortable doing this one, but I'm going to give it a try. I...
Confused by my wide range of symptoms
Hello everyone, I’m new here and I am curious if anyone has experienced any symptoms like my own. I am a 28 year old male,...
Small fiber neuropathy- unilateral facial paresthesia, carpal tunnel
Does anyone have small fiber neuropathy along with unilateral facial paresthesia, bilateral carpal tunnel, tinnitus? I have non-length dependent small fiber neuropathy from a skin...
Desperate: Is there any hope for neuropathy?
Hi everyone,In 2019 I developed neuropathy in some toes in my right foot. Stabbing, sharp, creepy crawling sensations. My podiatrist prescribed a compounded topical and...
Polyneuropathy. electric cell signaling treatment (ECST)
Hello, everyone! I have a question. Recently I was diagnosed with Polyneuropathy. This started kinda strange way-about year ago , after I was prescribed metformin...
Help asking doctor if this is small fiber neuropathy or something else
HELP please. im going to a neurologist that deals specifically with neuropathy. i had seen him in march and he took a bunch of blood...
Could AFOs help with balance?? They are helping me!
A few months ago, I happened to notice that @njed mentioned in a comment that he was using AFO (ankle foot orthotic) braces and that...
Small fiber peripheral neuropathy and alcohol
I'm fairly new to the forum. I've searched for this topic in previous discussions, but I've been unable to find it. If I've goofed, perhaps...
In Search of Relief
About 10 months ago I started feeling a pain in the second toe on my left foot. As time progressed my wife noticed my toe...
Small Fiber Neuropathy and New Onset Pain in Thigh Creases
I most likely have idiopathic small fiber neuropathy. My EMG, as well as multiple labs do not indicate the reason for my bilateral foot and...
Neuropathy making a comeback
Hello all - I’m new to the group. I’m a 43 year old female in good health. About 2 years ago my feet started burning...
Wheelchair for axonal polyneuropathy & ME/CFS: So freeing
Hello. I’ve been disabled with ME/CFS (Chronic Fatigue Syndrome) for almost 40 years. It began suddenly when I got a severe acute case of Epstein...
Some relief from idopathic peripheral neuropathy using hyperbarics
I've had PN for about 10 years. I am not diabetic. This past summer PN had progressed from my feet to almost my knees. I...
My Experience with Neuropathic Therapy Center at Loma Linda University
In 2010 I was diagnosed with a cancerous tumor in my fallopian tube. The treatment was surgery and five months of intense chemotherapy. With much...
Young adult with idiopathic sensory axonal neuropathy
Hello all, first time poster here. I'm hoping by reaching out and telling my story I might connect with others who may be going through...
My PN? What do you mean it's "progressive"?
Hello, fellow PNers! We've all had toothaches at one time or another. Do you remember what that's like? When you have a toothache, that's all...
Suspected auto-immune or immune mediated Small Fibre neuropathy
Hi everyone, I'm reaching out to see if anyone here has experienced a similar journey to mine and can offer some insight or hope. I’m...
CIDP diagnosis after severe GBS long ago, where do I start?
https://connect.mayoclinic.org/discussion/cidp-diagnosis-after-severe-gbs-long-ago-where-do-i-start/
I had a very severe case of GBS in 1973 but recovered and led a normal life including a stint in the Marines Corps. For...
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