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Neuropathy Support Group

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Have you tried the new Protocol 525 product for neuropathy relief?
I have used the original version of the Protocol 525 product (https://theprotocolworks.com/) since 2016. I have idiopathic small fiber peripheral neuropathy with the only symptom...
Support Group: Neuropathy
Last active: Dec 3, 2025
HFX/NEVRO Stimulator for Neuropathy
I have had neuropathy for several years as well as back pain (result of back surgery (lumbar laminectomy) and have in the past gotten cortisone...
Support Group: Neuropathy
Last active: Mar 14 9:49pm
Use of Biotin
I am an 85-year-old male with alcohol-induced peripheral neuropathy, diagnosed 10 years ago. My symptoms are painless numbness in both feet initially but extending up...
Support Group: Neuropathy
Last active: Mar 8, 2025
Best Antibiotics if you have PN?
Just wondering if anyone has experience, or links from reputable studies, of the best or worst antibiotics a person with existing PN should take (or...
Support Group: Neuropathy
Last active: Dec 29, 2022
New to neuropathy, terrified and seeking advice from you guys
I've had neuropathy in my feet for a couple of years, and the neurologist I consulted has never tracked down the cause. I didn't worry...
Support Group: Neuropathy
Last active: Sep 24, 2024
Chronic Sensorimotor Axonal Polyneuropathy and CMT2 and CMT4B?
Anyone diagnosed with Chronic Sensorimotor Axonal Polyneuropathy and CMT2 and CMT4B? CMT is a hereditary disease that comes down on the X-chromosome. My mother’s side...
Support Group: Neuropathy
Last active: Nov 10, 2025
Psychological effects of living with neuropathy
This is more of a whine than a question. I get so tired, not just physically but psychologically, of living with the neuropathy and the...
Support Group: Neuropathy
Last active: Dec 1, 2023
Asymmetric diabetic neuropathy may not be diabetic neuropathy after al
I have seem podcasts and posts verified by 2 different PCPs that if neuropathy is asymmetrical (e.g. manifesting in only one foot) that what it...
Support Group: Neuropathy
Last active: Oct 6, 2025
Pain returns after standing or walking
I’m currently taking Gabapentin and amitriptyline which has helped, just breaking through in the evenings. It feels like I’ve entered a new phase in this....
Support Group: Neuropathy
Last active: Nov 10, 2024
Dose anyone else feel like neuropathy is taking over their life?
I am in search of others that are in the same pain as I am. I feel like that the neuropathy has taken over my...
Support Group: Neuropathy
Last active: May 29, 2024
Qutenza
Since last August, my neuropathy pain is now in my shins as well as the tops of my feet. I’m on 1,200 mg of Gabapentin...
Support Group: Neuropathy
Last active: Jan 13, 2025
Skin Biopsy for diagnosing Small fiber peripheral neuropathy
I was diagnosed with SFPN a few months ago with no known cause after multiple tests to include glucose tolerance. after 4 months, I returned...
Support Group: Neuropathy
Last active: Apr 15, 2018
Mercury induced Neuropathy caused by Dental Treatment?
Hello, I have been suffering from peripheral neuropathy in my legs and hands, crippling pains on both sides when resting. The problem started as mild...
Support Group: Neuropathy
Last active: Dec 11, 2025
Anyone undergo hammer toe/claw toe surgery associated with neuropathy?
Male, 77, peripheral neuropathy since 2022 caused by adverse rx to COVID vaccine. Within last year have developed "claw toes" on both feet. Scheduled for...
Support Group: Neuropathy
Last active: Aug 29, 2025
Best Car for Folks with Foot Pain
Hi Everyone! My son is 16 and is still having severe pain on the bottoms of both feet 24 hours a day due to his...
Support Group: Neuropathy
Last active: Sep 29, 2021
Severe Sensorimotor Polyneuropathy, Muscle Wasting, Numbness
Hi Im 49 years old and was diagnosed with Neuropathy and then later changed to severe sensorimotor neuropathy. Nothing was really explained to me or...
Support Group: Neuropathy
Last active: 10 hours ago
idiopathic neuropathy and sugar, not a diabetic
I get neuropathy when I eat. Most thing cause some but sweets cause my feet to go numb, burn and pin and needles. I have...
Support Group: Neuropathy
Last active: Mar 9, 2024
Generalized Sensorimotor Peripheral Neuropathy over my entire body
To update I have Generalized Sensorimotor Peripheral Neuropathy. .. over my entire body. I was shocked when she did the nerve conduction test and I...
Support Group: Neuropathy
Last active: Apr 11, 2020
Exercise question:
I was recently diagnosed with idiopathic peripheral neuropathy. Currently have numbness in both feet, pain in the arches when walking, and some sharp stabbing pains...
Support Group: Neuropathy
Last active: Dec 31, 2025
Fatigue from Walking
Recently diagnosed with diabetic poly nuerapathy. When I walk for more than 10 minutes (1/4 of a mile) my feet get heavy and tired and...
Support Group: Neuropathy
Last active: Sep 7, 2023