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Neuropathy Support Group

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Discussions (643)
Neuropathy symptoms come and go - is this typical?
Hello everyone. I have an upcoming appointment with the neurologist to discuss getting the SFN biopsy (if he even does this or not). The last...
Support Group: Neuropathy
Last active: Jul 2, 2022
peripheral neuropathy and guitar playing
Hello, I am wondering if anyone else has experienced what I am experiencing with trying to play guitar. I used to be an avid guitar...
Support Group: Neuropathy
Last active: Feb 17 8:46pm
Twitching spasms all over neuropathy/meds
Hello all. I'm 49 and have Failed Back Surgery in 2012, so I'm still in pain and neuropathic pain in my feet. I've been on...
Support Group: Neuropathy
Last active: Jun 5, 2023
Neuropathy that comes and goes
We live on Long Island, NY. About a year ago, my husband (now aged 82) started having problems walking. After 4 neurologists (Parkinson specialist, vascular...
Support Group: Neuropathy
Last active: Apr 13, 2025
Small Fiber Neuropathy or Carpal Tunnel Syndrome?
So I've had weird pins & needles, numbness & tingling on and off in my hands and feet since 2022, which was diagnosed as small...
Support Group: Neuropathy
Last active: Nov 4, 2025
anyone feel more burning/numbness when sitting
Hi I am getting beyond frustrated! Laying down puts my pain at 110% ,sitting in a chair puts the numbness and burning way over my...
Support Group: Neuropathy
Last active: Dec 12, 2024
Anyone tried Bowen therapy for myofascial release?
Deep tissue massage has worked wonders for me in the past.. I haven't found anyone with the skill needed to work for me since my...
Support Group: Neuropathy
Last active: Jan 31, 2020
How to alleviate neuropathic pain, foot paralysis caused by infection?
What can be done to alleviate neuropathic pain in foot paralysis caused by neuroborreliosis or co-infections? Especially in the thighs, knees, and calves? The soles...
Support Group: Neuropathy
Last active: Aug 18, 2025
Trying to find relief
I was recently diagnosed with low b12. I’m on a supplement now but it seems my nerve pain is remaining the same. It spreads around...
Support Group: Neuropathy
Last active: Mar 29, 2025
Just wondering if any of you out there have used the ice boots and if
Hi everyone, just wondered if anybody has ever used the ice boots that they advertise on Amazon? I'm also wondering if anyone has used small...
Support Group: Neuropathy
Last active: Oct 6, 2025
socks and neuropathy please read
I have neuropathy in my feet and in the tips of my fingers. It bothers me tremendously it hurts, stings burns, etc. The strange thing...
Support Group: Neuropathy
Last active: Feb 9 10:51am
Have severe neuropathy don’t know the cause or what to do
I’ve been dealing with neuropathy for a while, I had the symptoms in 2009, but they went away I was walking as if I was...
Support Group: Neuropathy
Last active: May 3, 2022
Diabetic Neuropathy progressing?
Hello have had diabetes type 2 for about 4 years now, plus several years of prediabetes. I take Farxiga daily. Have been able to keep...
Support Group: Neuropathy
Last active: Feb 19, 2024
Connection to Epstein Barr Virus or PN as autoimmune disease
I have read about Epstein Barr Virus and some symptoms seem similar to PN, ie pins and needles in feet or hands. Any info about...
Support Group: Neuropathy
Last active: Jul 17, 2025
R-ALA
I have been taking 1200 mg of R-ALA daily for at least 2 years for peripheral neuropathy in both feet and legs. The main symptoms...
Support Group: Neuropathy
Last active: Dec 30, 2024
I need your help finding a state of the art Neurologist, Antioch, Il.
Male, 76, former first responder, & US Army, paratrooper, 100%, VA (P&T) disabled. Ambulatory, can drive, poor balance, non-diabetic, arthritis, heart patient, stents, spinal fusion,...
Support Group: Neuropathy
Last active: Apr 7, 2024
The maddening problem of SFN
I'm new here and have to admit the site can be overwhelming. I have Small Fiber Neuropathy (confirmed by skin punch test.) I'm continually told...
Support Group: Neuropathy
Last active: Feb 22, 2023
Neurogenic Muscle Tetany (contractions)
Hello. Once again I was up the entire night fighting to "undo" severe painful muscle contractions. These do not stretch out easily. They are not...
Support Group: Neuropathy
Last active: Dec 16, 2020
BFS and Neuropathy
I have had Benign Fasciculations all over my body for almost 20 years (normal NCS-EMG). In Sept 2021 I developed foot pain and was diagnosed...
Support Group: Neuropathy
Last active: Dec 12, 2024
Nerve biopsy
I had a nerve biopsy done at the Rochester Mayo Clinic on Dec 21st. They took 10cm from my upper arm. They told me my...
Support Group: Neuropathy
Last active: May 2, 2025