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Neuropathy Support Group

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Discussions (593)
Qutenza
Since last August, my neuropathy pain is now in my shins as well as the tops of my feet. I’m on 1,200 mg of Gabapentin...
Support Group: Neuropathy
Last active: Jan 13 7:18am
Best Antibiotics if you have PN?
Just wondering if anyone has experience, or links from reputable studies, of the best or worst antibiotics a person with existing PN should take (or...
Support Group: Neuropathy
Last active: Dec 29, 2022
New to neuropathy, terrified and seeking advice from you guys
I've had neuropathy in my feet for a couple of years, and the neurologist I consulted has never tracked down the cause. I didn't worry...
Support Group: Neuropathy
Last active: Sep 24, 2024
Use of Biotin
I am an 85-year-old male with alcohol-induced peripheral neuropathy, diagnosed 10 years ago. My symptoms are painless numbness in both feet initially but extending up...
Support Group: Neuropathy
Last active: Mar 8 6:43am
single cold toe - what to do?
I have one toe, a big toe on one foot, that feels very cold and uncomfortable, but the toe is warm to the touch with...
Support Group: Neuropathy
Last active: Jan 20 2:02pm
Small Fiber Nerve Neuropathy and exercise
I have been fortunate that my SFNN has been fairly mild. I take 600 mg of Gabapentin twice daily. I had been playing pickleball 5...
Support Group: Neuropathy
Last active: Jan 25 3:49pm
Small Fiber Neuropathy burning?
Hi everyone! I hope you’re all doing well with the quarantine. We are hanging in there!! I have a question about small fiber neuropathy. As...
Support Group: Neuropathy
Last active: Jul 12 8:55am
Best Car for Folks with Foot Pain
Hi Everyone! My son is 16 and is still having severe pain on the bottoms of both feet 24 hours a day due to his...
Support Group: Neuropathy
Last active: Sep 29, 2021
Psychological effects of living with neuropathy
This is more of a whine than a question. I get so tired, not just physically but psychologically, of living with the neuropathy and the...
Support Group: Neuropathy
Last active: Dec 1, 2023
Pain returns after standing or walking
I’m currently taking Gabapentin and amitriptyline which has helped, just breaking through in the evenings. It feels like I’ve entered a new phase in this....
Support Group: Neuropathy
Last active: Nov 10, 2024
Mattress matters
I have PN and recently my husband was diagnosed with autonomic neuropathy (dysautonomia). After 50 days in the hospital and several weeks of rehab he...
Support Group: Neuropathy
Last active: Aug 13 9:15am
Ideas for pain relief from Small Fiber Neuropathy (SFN)
I just wanted to pass along some ideas for those of you with idiopathic small fiber neuropathy. I am a 60-year-old female in excellent health...
Support Group: Neuropathy
Last active: Apr 26, 2024
Sudden onset neuropathy and scared
Hello everyone, I do not have an official diagnosis, bur I see my doctor Friday, and I am going to tell him about the sudden...
Support Group: Neuropathy
Last active: Sep 30, 2024
ketamine infusion and topamax??
Hello I began my weekly infusions last week,no pain change but I kept wondering what role the the topamax was playing because when i started...
Support Group: Neuropathy
Last active: May 2, 2019
Tingling in arms and legs - will this get worse? Can I still function?
My symptoms began a year and a half ago. I had Sciatica pain, foot drop and foot tingling - all on left side. Physical therapy...
Support Group: Neuropathy
Last active: Dec 13, 2018
Generalized Sensorimotor Peripheral Neuropathy over my entire body
To update I have Generalized Sensorimotor Peripheral Neuropathy. .. over my entire body. I was shocked when she did the nerve conduction test and I...
Support Group: Neuropathy
Last active: Apr 11, 2020
idiopathic neuropathy and sugar, not a diabetic
I get neuropathy when I eat. Most thing cause some but sweets cause my feet to go numb, burn and pin and needles. I have...
Support Group: Neuropathy
Last active: Mar 9, 2024
Does anyone have a Stim unit for their bladder and does your neuropath
Hi everybody, I am having a hard time with my stims unit that is due to my bladder having no nerves or muscles working with...
Support Group: Neuropathy
Last active: Jul 22, 2024
Connection between Neuropathy and L4,L5 Issues
I have been diagnosed with idiopathic PN by multiple Neurologists at Mayo, UNMC and Northwestern- the numbness runs from my knees to my feet with...
Support Group: Neuropathy
Last active: Oct 14, 2024
Axonal Sensorimotor Polyneuropathy: Looking for someone to relate
I apologize in advance for any grammatical mistakes. Dictation isn’t always my friend. Hello! Just stumbled upon this website and hope to find someone like...
Support Group: Neuropathy
Last active: Jun 27, 2023