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Neuropathy Support Group

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Acetyl L-Carnitine and neuropathy
A retired dr. Recommended 3 grams daily. For my heart and diabetes. Have been taking liquid form for 3 months. Have reduced my insulin units...
Last active: Aug 14, 2023
I am curious to know other’s stories of post viral neuropathy.
I am curious to know other’s stories of post viral neuropathy. I acquired a peripheral neuropathy out of the blue after a viral illness; and,...
Support Group: Neuropathy
Last active: Aug 8, 2022
Beware - Ciproflacacin antibiotics can cause permanent damage
In 2017, I took Cipro for just five days to treat a simple UTI. Since then, my quality of life has been steadily deteriorating. Over...
Support Group: Neuropathy
Last active: Jan 22 1:05pm
Has anyone used the MIKO Foot Massager and found it helped?
I'm a little worried about trying I purchased it two years ago. (MIKO MAS II) I don't know where to go for the neuropathy ..rediculopathy.....
Support Group: Neuropathy
Last active: May 10, 2025
Numbness comes and goes
Does anyone have numbness along the calf and ankle on one leg one day and the other another day? I find when I elevate the...
Support Group: Neuropathy
Last active: Jun 16, 2023
SPR Peripheral Nerve Stimulator (SPRINT)
Hi everyone! The Sprint implant was recently recommended my son (17 years old) who suffers from severe pain on the bottoms of both feet from...
Support Group: Neuropathy
Last active: Nov 15, 2025
Twitching in upper body (biceps) after axonal, length dependent diagno
Hello, recently diagnosed (Feb 20th) after EMG on left leg with axonal, length-dependent, peripheral neuropathy. Experienced numbness in both feet and twitching in thigh just...
Support Group: Neuropathy
Last active: Mar 10, 2023
Is there a way to test neuropathy w/o sticking needles in your veins?
I have neuropathy from Hansen’s Disease (leprosy). It was actually the first symptom for 18 months until others started manifesting in my joints which led...
Support Group: Neuropathy
Last active: Jun 16, 2023
Severe pain in upper inner thigh
I’ve had SFN, i.e. PN in my feet for ~2.5 years, taking Oxycodone and Methadone for severe pain. Yesterday, I had an attack of severe...
Support Group: Neuropathy
Last active: Apr 1, 2022
I have seen 3 neurologist all have suggested I have physical therapy w
I have seen 3 neurologist all have suggested I have physical therapy for balance, but this has not relieved my numbness in my feet and...
Support Group: Neuropathy
Last active: Sep 25, 2023
Carbamezatine for small fiber neuropathy
I just started on Carbamezatine (100mg twice a day) and it seems to be helping with my small fiber neuropathy pain. I have had neuropathy...
Support Group: Neuropathy
Last active: Jul 25, 2025
Anyone using Amitriptyline HCL for Neuropathy instead of Gaba or Lyric
A doctor has prescribed Amitriptyline HCL for my Neurapathy pain in my feet instead of Gaba or Lyrica. Does anyone have any experience with this....
Support Group: Neuropathy
Last active: Dec 6, 2023
Raynauds Syndrome and Prudential Nerve damage related to Neurology?
I have been treated for Neuropathy in feet and legs using a newer laser treatment to regenerate nerves. Worked while in treatment, pain and throbbing...
Support Group: Neuropathy
Last active: Jul 24, 2023
Benedryl effect?
Yesterday morning I could barely stand putting on shoes. Last night I took two benedryl (diphenhydramine) to help fall asleep. This morning my feet, while...
Support Group: Neuropathy
Last active: Feb 1 11:56pm
Body-wide pressure induced numbness despite normal MRI/EMG/Biopsy
For the last six months, mild pressure on my arms/legs/hands/feet has been causing them to go numb. That numbness then goes away when pressure is...
Support Group: Neuropathy
Last active: Nov 25, 2025
Nerve damage and pain that isn’t neuropathy but feels like it.
Hello. For over three years I thought I had diabetic neuropathy. All the signs and symptoms, burning, stinging, numb areas, boring sensation. I was told...
Support Group: Neuropathy
Last active: Nov 7, 2025
What type of specialist is the best type for Peripheal Neuropathy?
What type of specialist is the best type for Peripheal Neuropathy? I have seen two neurologists, been referred to a Podiatrist, and not one has...
Support Group: Neuropathy
Last active: Nov 11, 2023
Do Small Fiber Nerves have a connection to Sciatica Nerves?
I have had cervical and lumbar spine issues for about 50 years, degenerative disc disease, sciatica nerve issues in both legs, and now arthritis. I...
Support Group: Neuropathy
Last active: Sep 2, 2022
PN and the problem of a callus on sole of foot.
I have dealt with PN for 3 years or so, but although the PN comes with its own problems; numbness, tingling, and balance, the biggest...
Support Group: Neuropathy
Last active: May 18, 2024
Is body pain, dizziness, and acid reflux normal with SFN?
For those of us with SFN, does anyone else experience body pain and dizziness? My understanding is that it is supposed to affect the hands...
Support Group: Neuropathy
Last active: Mar 29, 2022