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Neuropathy Support Group

Public Support Group
9,989 total results
Discussions (552)
Recommendations for non diabetic PN Dr at Mayo Clinic
Hi. 2.5 yrs ago I had horrific burning in my feet and have since been diagnosed with PN. The first neurologist diagnosed me with CIDP...
Support Group: Neuropathy
Last active: Feb 21, 2024
Is it worth trying to resolve peripheral neuropathy?
G'day, I'm 53 yo bloke and suffer from peripheral neuropathy. I get these sharp burning/stinging pains (like bee stings) that usually start in my hands...
Support Group: Neuropathy
Last active: Aug 24, 2020
NEUROPATHY 101! Learn with my past recovery and reinjure!
Ok guys! Thank you for reading! I want to express my wholeheartedly prayers to everyone who is enduring nerve damage and neuropathy! It's changed my...
Support Group: Neuropathy
Last active: May 27 7:38pm
Chronic Sensorimotor Axonal Polyneuropathy and CMTuagnised with Chroni
Anyone diagnosed with Chronic Sensorimotor Axonal Polyneuropathy and CMT2 and CMT4B? CMT is a hereditary disease that comes down on the X-chromosome. My mother’s side...
Support Group: Neuropathy
Last active: Feb 20 9:24am
single cold toe - what to do?
I have one toe, a big toe on one foot, that feels very cold and uncomfortable, but the toe is warm to the touch with...
Support Group: Neuropathy
Last active: Jan 20 2:02pm
Small Fiber Nerve Neuropathy and exercise
I have been fortunate that my SFNN has been fairly mild. I take 600 mg of Gabapentin twice daily. I had been playing pickleball 5...
Support Group: Neuropathy
Last active: Jan 25 3:49pm
Dose anyone else feel like neuropathy is taking over their life?
I am in search of others that are in the same pain as I am. I feel like that the neuropathy has taken over my...
Support Group: Neuropathy
Last active: May 29, 2024
Have you tried the new Protocol 525 product for neuropathy relief?
I have used the original version of the Protocol 525 product (https://theprotocolworks.com/) since 2016. I have idiopathic small fiber peripheral neuropathy with the only symptom...
Support Group: Neuropathy
Last active: Jan 26 8:52pm
Skin Biopsy for diagnosing Small fiber peripheral neuropathy
I was diagnosed with SFPN a few months ago with no known cause after multiple tests to include glucose tolerance. after 4 months, I returned...
Support Group: Neuropathy
Last active: Apr 15, 2018
Qutenza
Since last August, my neuropathy pain is now in my shins as well as the tops of my feet. I’m on 1,200 mg of Gabapentin...
Support Group: Neuropathy
Last active: Jan 13 7:18am
Best Antibiotics if you have PN?
Just wondering if anyone has experience, or links from reputable studies, of the best or worst antibiotics a person with existing PN should take (or...
Support Group: Neuropathy
Last active: Dec 29, 2022
New to neuropathy, terrified and seeking advice from you guys
I've had neuropathy in my feet for a couple of years, and the neurologist I consulted has never tracked down the cause. I didn't worry...
Support Group: Neuropathy
Last active: Sep 24, 2024
Use of Biotin
I am an 85-year-old male with alcohol-induced peripheral neuropathy, diagnosed 10 years ago. My symptoms are painless numbness in both feet initially but extending up...
Support Group: Neuropathy
Last active: Mar 8 6:43am
Everyone with Peripheral Neuropathy
We all experience pain and loss of feeling in hand feet etc The reasons for the nerve damage vary with many groups. Simplifying this into...
Support Group: Neuropathy
Last active: Jun 26 10:01am
Diabetic neuropathy
New member here. What I am really looking for is a layman’s guide to neuropathy to answer the many questions I have.If anyone here can...
Support Group: Neuropathy
Last active: Jun 26 6:38am
Psychological effects of living with neuropathy
This is more of a whine than a question. I get so tired, not just physically but psychologically, of living with the neuropathy and the...
Support Group: Neuropathy
Last active: Dec 1, 2023
Best Car for Folks with Foot Pain
Hi Everyone! My son is 16 and is still having severe pain on the bottoms of both feet 24 hours a day due to his...
Support Group: Neuropathy
Last active: Sep 29, 2021
Looking for people who have high levels of B6 trigger neuropathy.
Two years ago I experienced a number of different symptoms that I thought were disconnected…nausea, heartburn, walking off balance, burning/ pinprick pain in feet, numbness....
Support Group: Neuropathy
Last active: Jun 18 4:28pm
Pain returns after standing or walking
I’m currently taking Gabapentin and amitriptyline which has helped, just breaking through in the evenings. It feels like I’ve entered a new phase in this....
Support Group: Neuropathy
Last active: Nov 10, 2024
I truly need help,
I’ve been suffering for almost two years now. It started when all my finger nails basically fell and fingers hurt so badly. Dr sent me...
Support Group: Neuropathy
Last active: Jun 12 8:05am