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Neuropathy Support Group

Public Support Group
8,735 total results
Discussions (459)
HFX/NEVRO
I have had neuropathy for several years as well as back pain (result of back surgery (lumbar laminectomy) and have in the past gotten cortisone...
Support Group: Neuropathy
Last active: Sep 20 11:24am
High rheumatoid factor with sfn without RA from implant?
I'm 54 a little dizzy with burning puffy feet. All my blood work checks out good except R factor of 146. This would lead me...
Support Group: Neuropathy
Last active: May 29, 2022
Any experience with Radio Frequency Wave abation procedures?
Hello. First, I should mention that this is my first post to the group. I have had neuropathic pain issues in my feet for many...
Support Group: Neuropathy
Last active: Jun 26, 2018
Neuropathy pain.
Hello, I have had this so called"neuropathy" for almost two years now, it began in dec 2016, symptoms got worse over the next few months,...
Support Group: Neuropathy
Last active: Dec 5, 2022
Hopeless and Discouraged, again! Seeking any advice.
I was diagnosed with sensorimotor Polyneuropathy and small fiber neuropathy. I have tried everything, with really bad side affects. Just today….I went to pain management...
Support Group: Neuropathy
Last active: May 23, 2023
Numb heels and internal vibrations
Hi I've been dealing with a severe numbness in my entire heel for about two weeks now. Prior to that I start feeling a vibrating...
Support Group: Neuropathy
Last active: Nov 2, 2018
Right Upper Quadrant (RUQ) pain seemingly unrelated to SFN
I was watching a YouTube video with a neurologist discussing how someone else's patient had r.u.q. pain (gallbladder location) They removed her gallbladder only to...
Support Group: Neuropathy
Last active: Apr 28, 2022
Strange head sensations while taking methadone for pain
Hello all, I have severe PN from the calves down, but legs/feet. The pain is unbearable, but for the methadone I take. Even with 20mg...
Support Group: Neuropathy
Last active: Aug 29 9:18am
Confused: test didn't detect neuropathy, but many symptoms
HiJudging from the other posts I am not alone and extremely disappointed with the current health care i am receiving. I was given a chemo...
Support Group: Neuropathy
Last active: Feb 20, 2020
Neuropathy caused by ilioinguinal nerve entrapment
Hi my name is Sean, I have been struggling with Neuropathy, Small fiber Neuropathy and Ilioinguinal nerve entrapment / compression since an inguinal hernia mesh...
Support Group: Neuropathy
Last active: Oct 27, 2023
Scientific research and scholarly papers on Small Fiber Neuropathy
@burningfeetinphoenix...here. I started a new discussion as in looking through the discussions, I could find no discussion on research, clinical trials, published papers etc, on...
Support Group: Neuropathy
Last active: Nov 13, 2019
Water Exercise for Peripheral Neuropathy
Better on Water than on Land: Aquatic Exercise for Peripheral Neuropathy The Neuropathy Association of Texas (NATX) recently shared a presentation on aquatic exercise for...
Support Group: Neuropathy
Last active: Aug 26, 2018
Transitioning back to Gabapentin from lyrica and how?
I am currently taking 75 mg lyrica 2x day, because the gabapentin dose I was on 300 mg was not helping me with the pain...
Support Group: Neuropathy
Last active: Feb 9 7:08pm
Complex partial seizures and small fiber neuropathy
I am 62 years old, and had complex partial seizures for about 25 years. They were very distinct, with aura, repetitive image, brief “paralysis” (...
Support Group: Epilepsy & Seizures
Last active: Mar 8 8:10am
Seeking help, information, support...
I am going to apologize now for how long this is going to be. Back in late Winter, early Spring 2016, I developed a pins...
Support Group: Neuropathy
Last active: Aug 16, 2018
Could AFOs help with balance?? They are helping me!
A few months ago, I happened to notice that @njed mentioned in a comment that he was using AFO (ankle foot orthotic) braces and that...
Support Group: Neuropathy
Last active: 5 days ago
Need Help..peripheral neuropathy, chronic widespread pain and weakness
Hello. I'm hoping to obtain help from either a Mayo Clinic patient or Mayo Clinic Staff. I am 47 years old, female, married. For the...
Support Group: Neuropathy
Last active: Jul 3, 2022
Diagnosed with Peripheral Neuropathy, or not??
I was diagnosed with Peripheal Neuropathy by a neurologist years ago and treated with Gabapentin, which I also took to manage seizures. As a referral...
Support Group: Neuropathy
Last active: Jan 1 4:09pm
SFN - facial symptoms - wanted share in case they help
I have facial tingling/tightness/weakness from SFN. I wanted to share a few things which have alleviated the symptoms. They may not work for you but...
Support Group: Neuropathy
Last active: Dec 15, 2022
can someone please help me? im only 23
Could this still be peripheral neuropathy? Or am I paranoid? Hello, I’m 23F. I’m incredibly active, ranging from 20,000-30,000 steps a day. I work a...
Support Group: Neuropathy
Last active: Jul 2 8:55pm