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Neuropathy Support Group

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10,310 total results
Discussions (581)
Sarcoidosis and neuropathy
Does anyone here have sarcoidosis and neuropathly my neuropathy pain is lunbearable it's almost to the point where I'm ready to cut off my feet
Support Group: Neuropathy
Last active: Apr 15, 2022
Can small fiber nerves regenerate?
I first became plagued with small fiber neuropathy in 2017 due to an environmental exposure to abnormally high levels of carbon dioxide and carbon monoxide...
Support Group: Neuropathy
Last active: Dec 6, 2023
Can lamotrigine be causing my neuropathic symptoms to get worse?
Only about a month into starting using lamotrigine, my feet and hands started to burn significantly more than usual. Could there be a connection here?
Support Group: Neuropathy
Last active: May 15 1:00pm
Low Dose Naltrexone and Neuropathy
Hi everyone. Lori Renee here. I have been on Low Dose Naltrexone for about 2 weeks. It may be too soon to post about this...
Support Group: Neuropathy
Last active: Jun 30 6:49pm
Sympathetic lumber block for small fibre neuropathy?
My pain specialist has suggested a sympathetic lumber block for my "pain" which she thinks is similar to CRPS. But I have googled and think...
Support Group: Neuropathy
Last active: Aug 9 6:38am
Experience with acupuncture needles and vaccaria seeds for ears
Today I had my first 1 hour treatment for neuropathy in feet by acupuncture doctor who has MD from University of Florida and has grant...
Support Group: Neuropathy
Last active: Jun 11, 2023
Idiopathic Small Fiber Neuropathy Research
This coming June, I will make a journey to the Mayo Clinic in Rochester, Minnesota seeking answers to my diagnosis of idiopathic small fiber neuropathy....
Support Group: Neuropathy
Last active: Aug 18 10:06am
Urination affected by Small Fiber Neuropathy?
I'm a 72 years old male and have SFN neuropathy in my feet and hands going on 2 years. Seems as though there are more...
Support Group: Neuropathy
Last active: Jun 16, 2022
Starting down the path of trouble sleeping,
My lower legs and feet are burning at night, now I’m feeling nerve sensations in my body that are troubling enough that I’m having trouble...
Support Group: Neuropathy
Last active: May 26, 2024
More Gabapentin, more pain?
The heat seems to affect my feet. 91 is too hot for north Dakota! I also got my gaba increased and my pain is worse!...
Support Group: Neuropathy
Last active: Jun 29, 2024
Anyone with idiopathic SFN have Celiac Disease?
I just read that Celiac Disease can cause SFN. Wondering if anyone else with Celiac has numbness and pain in feet, legs, or hands?
Support Group: Neuropathy
Last active: May 1, 2024
I have neuropathy
I have noticed that my feet and toes stay cold and turn blue if I sit for a while even though I have been told...
Support Group: Neuropathy
Last active: Jan 21 5:13am
Anyone had experience of using Finasteride causing neuropathy?
I have been using Finasteride for several years to control an enlarged prostrate and it seems to have worked according to my PSA results.Unfortunately I...
Support Group: Neuropathy
Last active: Aug 29 2:44pm
Has anyone ever experienced severe pressure/pain in their lower legs ?
Has anyone ever experienced severe pressure in their lower legs and feet as a symptom of neuropathy ? If so how did you deal with...
Support Group: Neuropathy
Last active: Dec 21, 2023
Any info on Small Fiber Neuropathy & Short-term Memory Loss
My neuropathic feet pain is severe and chronic. (I have not yet found any way to relieve my pain.) I continue to have severe feet...
Support Group: Neuropathy
Last active: Nov 16, 2022
Going on Vacation with Neuropathy
I have neuropathy in my feet with balance issues so using a walker is a must for me. I would dearly love to go on...
Support Group: Neuropathy
Last active: Aug 7 10:59am
Clonazepam.025 vs Gabapentin 300mg
I have had peripheral neuropathy in the feet and lower legs, my feet tingle and burn at night and I experience restless leg syndrome. From...
Support Group: Neuropathy
Last active: Jan 8, 2023
Neuropathy and constipation
I've always had issues with constipation. I've got SFN now for 2 years in my feet and hands, numbness mainly, and notice my constipation is...
Support Group: Neuropathy
Last active: Jul 14, 2023
Pain and Discomfort RELIEVED with putting SHOES On. Anyone experience?
So my neuropathy primarily feels like a compression bandage wrapped Very tightly around both feet. With throbbing or stabbing pain occasionally in toes. Worse when...
Support Group: Neuropathy
Last active: Jul 16 3:49pm
Toes numb
My toes are numb when I wake up in the morning, balls of feet feel puffy, as soon as I stand up, it all goes...
Support Group: Neuropathy
Last active: Feb 16, 2023