Neuropathy Support Group

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Comments (9,762)

Lori, I am starting to do some reading online about central sensitization (CS) and trying to...

https://connect.mayoclinic.org/comment/93332/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: May 11, 2020

Hi. The most confusing and frustrating part of SFN, for me, has been and continues to...

https://connect.mayoclinic.org/comment/158323/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Feb 3, 2020

I originally replied to this post on May 21st 2019 (please read it) where I blamed...

https://connect.mayoclinic.org/comment/243862/

Discussion: Shingrix and peripheral neuropathy

Support Group: Neuropathy

Posted: Jan 19, 2020

@helennicola, Good afternoon, thanks for responding today. I will cut right to the chase. The tingling...

https://connect.mayoclinic.org/comment/157652/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Aug 15, 2019

After hours of scrupulous on line research, I bought two CBD products that you order on...

https://connect.mayoclinic.org/comment/203647/

Discussion: CBD oil for Neuropathy

Support Group: Neuropathy

Posted: Feb 27, 2019

Hello @lavieauxusa1972, welcome to Mayo Clinic Connect. I have idiopathic small fiber peripheral neuropathy with only...

https://connect.mayoclinic.org/comment/145162/

Discussion: Small Fiber Neuropathy: What helps?

Support Group: Neuropathy

Posted: Dec 11, 2018

Hi Rose, I don't have any medical training or background but I would be cautious with...

https://connect.mayoclinic.org/comment/196083/

Discussion: Skin Biopsy for diagnosing Small fiber peripheral neuropathy

Support Group: Neuropathy

Posted: Apr 15, 2018

@pkindron, I also have peripheral neuropathy, with no discernable cause. I've tried every medication available for...

https://connect.mayoclinic.org/comment/91987/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jul 19, 2017

I'm with you Mary - although I don't have the pain and just have numbness in...

https://connect.mayoclinic.org/comment/91489/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jun 23, 2016

Re - Statins. I have been subscribed statins for several years with no noticeable side effects....

https://connect.mayoclinic.org/comment/1163795/

Discussion: Neuropathy pills: How to avoid scams?

Support Group: Neuropathy

Posted: Oct 28, 2024

I treat my SFN with diet, moderate exercise (as tolerated), and supplements. I get the most...

https://connect.mayoclinic.org/comment/1228508/

Discussion: Does anyone treat their neuropathy without big pharma drugs?

Support Group: Neuropathy

Posted: Feb 3 10:21am

Hi Harley! It is so nice when someone actually responds to a post. One thing I...

https://connect.mayoclinic.org/comment/895133/

Discussion: Neuropathy and constipation

Support Group: Neuropathy

Posted: Jul 13, 2023

Dear Lori...Thank you for sharing you experience. I am excited hearing about your trial of low...

https://connect.mayoclinic.org/comment/1338001/

Discussion: Low Dose Naltrexone and Neuropathy

Support Group: Neuropathy

Posted: Jun 29 4:57pm

Omg. Im so sorry that you have to live with this. I also have severe sensory...

https://connect.mayoclinic.org/comment/1367117/

Discussion: Increasingly Difficult to Accept Peripheral Neuropathy

Support Group: Neuropathy

Posted: Aug 9 1:31pm

Iv already posted a comment iv got pn my symptoms are burning no pain no real...

https://connect.mayoclinic.org/comment/1198603/

Discussion: Has anyone used compression boots to relieve neuropathy pain?

Support Group: Neuropathy

Posted: Dec 28, 2024

Good morning, Celia! (@celia16) It's Tuesday morning, and I'm feeling better. I recognize that 'better' is...

https://connect.mayoclinic.org/comment/1172255/

Discussion: Shortness of breath: occasional 'bad' days?

Support Group: Neuropathy

Posted: Nov 12, 2024

Please tell me more about your PN. What areas does it affect and are you in...

https://connect.mayoclinic.org/comment/1147380/

Discussion: Gabapentin dosing

Support Group: Neuropathy

Posted: Sep 25, 2024

I've had entire body tremors before. Easiest way to describe it is it feels the same...

https://connect.mayoclinic.org/comment/1116402/

Discussion: Mostly in my legs, but does anyone else’s body vibrate?

Support Group: Neuropathy

Posted: Aug 2, 2024

Congratulations on your recovery from PN. I have small fiber neuropathy in my 4 extremities but...

https://connect.mayoclinic.org/comment/1086777/

Discussion: My Miraculous Recovery from Neuropathy

Support Group: Neuropathy

Posted: Jun 14, 2024

Welcome @schytil, I think it's great that you are helping watchout for your mother as there...

https://connect.mayoclinic.org/comment/1043060/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Mar 31, 2024

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