Neuropathy Support Group

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Comments (8,406)

I appreciate everyone's input on this thread. It does, indeed, help to just hear of other...

https://connect.mayoclinic.org/comment/1034549/

Discussion: Treatment options that have worked for Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Mar 16, 2024

Hello! I've been AWOL from Mayo for a couple of days. Because I'm the fellow who...

https://connect.mayoclinic.org/comment/877257/

Discussion: What to ask a podiatrist?

Support Group: Neuropathy

Posted: Jun 12, 2023

You bring up a good point. My doctor is trying to diagnose uncommon autoimmune conditions. I...

https://connect.mayoclinic.org/comment/844840/

Discussion: Nerve damage and pain that isn’t neuropathy but feels like it.

Support Group: Neuropathy

Posted: Apr 17, 2023

The stimulator is from Nalu Med, https://nalumed.com/, and it works on the same principles as a...

https://connect.mayoclinic.org/comment/158626/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jun 5, 2020

I will be starting Rituxan infusions in a few months with a new neurologist in a...

https://connect.mayoclinic.org/comment/1099974/

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jul 5, 2024

@sufiwalk you most likely have low back Lumbar-Sacral spine issues from years of sitting at your...

https://connect.mayoclinic.org/comment/1087986/

Discussion: Looking to connect with people who have non-diabetic neuropathy

Support Group: Neuropathy

Posted: Jun 16, 2024

Artemis1886. After an EMG I was told I have Axonal sensory Polyneuropathy. Is that what you...

https://connect.mayoclinic.org/comment/1076453/

Discussion: Comments about CBD and/or THC for neuropathy pain and paresthesia?

Support Group: Neuropathy

Posted: May 28, 2024

I have - My fr Kappa light chains was 22.8 kappa/Lamba Ratio was 2.40 Both a...

https://connect.mayoclinic.org/comment/1065050/

Discussion: Kappa Light Chains and PN

Support Group: Neuropathy

Posted: May 9, 2024

I do not understand SFN. What is the name of the test that concluded SFN? For...

https://connect.mayoclinic.org/comment/1062593/

Discussion: Small Fiber Neuropathy

Support Group: Neuropathy

Posted: May 5, 2024

I agree with your decision. I had 2 Drs prescribe Gabapentin and after researching side effects...

https://connect.mayoclinic.org/comment/962701/

Discussion: Neuropathy: Anyone have any experience with gabapentin?

Support Group: Neuropathy

Posted: Nov 11, 2023

I hear all of y’all,so good to see and read your input. I’m @83 yrs. Last...

https://connect.mayoclinic.org/comment/949795/

Discussion: Psychological effects of living with neuropathy

Support Group: Neuropathy

Posted: Oct 18, 2023

You can purchase Susan’s CBD Salve online at www.susanscbd.com It’s pricey but lasts. Well worth it...

https://connect.mayoclinic.org/comment/941188/

Discussion: Foot neuropathy: What gives you relief?

Support Group: Neuropathy

Posted: Oct 3, 2023

I forgot to mention the biggest pain for me with the hammertoes is the toenails sometimes...

https://connect.mayoclinic.org/comment/912303/

Discussion: Hammertoe Surgery and Neuropathy

Support Group: Neuropathy

Posted: Aug 13, 2023

I’ve been getting progressively worse over the past 11 yrs. I was diagnosed with CIDP few...

https://connect.mayoclinic.org/comment/893801/

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jul 11, 2023

I really think I would prefer Tai Chi I don't know why except it doesn't seem...

https://connect.mayoclinic.org/comment/844548/

Discussion: Anyone try Tai Chi to help with neuropathy and balance?

Support Group: Neuropathy

Posted: Apr 17, 2023

I have the same issue with wearing shoes. It feels like I'm wearing shoes that are...

https://connect.mayoclinic.org/comment/827836/

Discussion: Peripheral Neuropathy - Anyone else?

Support Group: Neuropathy

Posted: Mar 18, 2023

Hi, seems we have a lot in common, I too wear the sketchers shoe, and have...

https://connect.mayoclinic.org/comment/818243/

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Feb 27, 2023

When I fly to Los Angeles, CA twice a year, l always ask for and sit...

https://connect.mayoclinic.org/comment/812637/

Discussion: SFN and dealing with a 14 hour flight, Anyone have experience?

Support Group: Neuropathy

Posted: Feb 16, 2023

Good DAY Neuropathy lower legs and feet. First Dr. gave me Gabapentin, not telling me it...

https://connect.mayoclinic.org/comment/796983/

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jan 15, 2023

I took both those drugs and the side effects were terrible, especially the Lyrica. I tried...

https://connect.mayoclinic.org/comment/795580/

Discussion: B-6 vitamin danger!

Support Group: Neuropathy

Posted: Jan 12, 2023

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