Neuroendocrine Tumors (NETs) Support Group

Way back in 2007 I was diagnosed with sarcoidosis in my lungs. At that time they mentioned a nodule of 8 mm in my left...

77, female, diagnosed withNET carcinoid tumors in LLlung and left lymph nodes. No other organs lighting up on scans, of which there were many. No...

Has anyone had this LNET treated with Radiation and what was your outcome?

At the moment, I have only one lung net in my right lung. The last two days I have been having severe discomfort in my...

One doctor suggested that I have DIPNECH I do have small carcinoids throughout my lungs. They were discovered when an Adenocarcinoma and my top right...

@tufan and anyone else who can be helpful please My wife has been diagnosed with NET Lung and liver metastasis (stage 4) early December 2022....

I had a stage 1 nodule removed from left lobe now have a new 7mm in lower lobe 3 months after surgery and they said...

My understanding was that flushing only happened with those who have GI NETS. However, I have developed something very weird in the last 8 months...

My brother has recently been diagnosed with NETs of the lung. They are lining the right side pleura, and one on the carinal lymph node....

I have been diagnosed with both NETs-Lung and DIPNECH. Do I need two teams to be involved since I have two different conditions or one...