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Neuroendocrine Tumors (NETs) Support Group

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Sarcoidosis and Lung NET, upcoming surgery
Way back in 2007 I was diagnosed with sarcoidosis in my lungs. At that time they mentioned a nodule of 8 mm in my left...
Last active: Jul 19, 2024
Discussion
Describe your recovery from lung NET surgery
77, female, diagnosed withNET carcinoid tumors in LLlung and left lymph nodes. No other organs lighting up on scans, of which there were many. No...
Last active: May 15, 2024
Discussion
Previous heart surgery & risks of surgery to remove lung net
I had a triple bypass 6 years ago and at that time they discovered lung nodule. It has been followed with CT scans & slowly...
Last active: Mar 16 8:37am
Discussion
Atypical Lung NET treated with radiation: What was your outcome?
Has anyone had this LNET treated with Radiation and what was your outcome?
Last active: Mar 26, 2025
Discussion
Lung Nets and pain in arm pit
At the moment, I have only one lung net in my right lung. The last two days I have been having severe discomfort in my...
Last active: Jun 2, 2024
Discussion
I am 75 and have carcinoid tumors NET in lungs
One doctor suggested that I have DIPNECH I do have small carcinoids throughout my lungs. They were discovered when an Adenocarcinoma and my top right...
Last active: 3 hours ago
Discussion
NET lung with Liver Metastasis (stage 4)
@tufan and anyone else who can be helpful please My wife has been diagnosed with NET Lung and liver metastasis (stage 4) early December 2022....
Last active: Apr 20, 2024
Discussion
stage 1A Net removed from upper left lobe
I had a stage 1 nodule removed from left lobe now have a new 7mm in lower lobe 3 months after surgery and they said...
Last active: Aug 7, 2025
Discussion
Flushing with NETS lung cancer?
My understanding was that flushing only happened with those who have GI NETS. However, I have developed something very weird in the last 8 months...
Last active: May 22, 2024
Discussion
Anyone have lung NETs lining your pleura?
My brother has recently been diagnosed with NETs of the lung. They are lining the right side pleura, and one on the carinal lymph node....
Last active: Jul 24, 2025