Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,626 total results

Comment

Hello, mamandneuroendocrine! I was in a similar situation. My pNET was discovered accidentally during a stroke...

https://connect.mayoclinic.org/comment/953478/

Discussion: Metastatic NeuroEndocrine Grade 3 - ki 80% -

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2023

Comment

Hello everyone 6/28/22 I have been diagnosed with pancreatic cancer stage 4... My stomach kept burning...

https://connect.mayoclinic.org/comment/799155/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2023

Comment

I was diagnosed with Pancreatic Acinar Cell Carcinoma in June 2012 with the tumor 4cmx3cmx3cm on...

https://connect.mayoclinic.org/comment/1059508/

Discussion: Anyone have Pancreatic Acinar Cell Carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 30 6:50am

Comment

I, experienced weight gain, depression, and muscle soreness. I was also lethargic, often lacking the energy...

https://connect.mayoclinic.org/comment/805097/

Discussion: Gynecologic neuroendocrine metastasized to lungs: Need a specialist

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

Comment

Thank you Giness for your kind words. Yes, it is scary esp when there is no...

https://connect.mayoclinic.org/comment/764699/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2022

Comment

Hello @christine714 I would like to join @colleenyoung and @sophiarose in welcoming you to Connect. I...

https://connect.mayoclinic.org/comment/750331/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2022

Comment

Since my diagnosis in 2002 at Mayo Clinic, I have had surgery to remove appendix, gallbladder,...

https://connect.mayoclinic.org/comment/137542/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2017

Comment

The first embolization I felt nothing and the doctor told me he was worried I’d be...

https://connect.mayoclinic.org/comment/1048341/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10 9:42am

Comment

Going for my 3rd injection of 120 mg Lanreotide next week. No facial or lip sores....

https://connect.mayoclinic.org/comment/1119417/

Discussion: Facial and lip sores from lanreotide injections for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 7 10:01am

Comment

I understand that metastasis means it's spread. What bothers me is his initial oncologist told him...

https://connect.mayoclinic.org/comment/762162/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 17, 2022

Follow

5516

5 minutes ago

Digestive Health

Follow

12631

4 hours ago

Pancreatic Cancer

Follow

2237

8 hours ago

Visiting Mayo Clinic

Follow

4526

8 hours ago

Follow

1230

9 hours ago