Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello @cu2 We have some other members who have discussed liver tumors related to NETs. I'm...

https://connect.mayoclinic.org/comment/739629/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 20, 2022

Comment

I should mention that my primary (origin) started in the small bowel and metastasized into my...

https://connect.mayoclinic.org/comment/1227757/

Discussion: Histotripsy near St. Louis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 1:21pm

Comment

Hello. My thoughts are with you. My husband has had 3 of 4 lutathera treatments (PRRT)...

https://connect.mayoclinic.org/comment/1074467/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2024

Comment

@cewald62, my wife has NET in the liver still after finding the primary tumor on the...

https://connect.mayoclinic.org/comment/1146827/

Discussion: After initial tests/consults at Mayo: When does NETs treatment start?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2024

Comment

I had Whipple procedure in October of 2024 . I caught the cancer early stage 1...

https://connect.mayoclinic.org/comment/1226344/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31 1:54pm

Comment

@splendrous: I was in this situation last June (2024) - small intestine/stomach primary with liver mets…...

https://connect.mayoclinic.org/comment/1364348/

Discussion: Interested in your experience with treatments of PRRT vs surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5 2:15pm

Comment

Hi @millds, thank you for being so willing to share with @kim1965 by email. It's best...

https://connect.mayoclinic.org/comment/949985/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2023

Comment

I went through that surgery ( and hysterectomy at the same time due to endometrial cancer)....

https://connect.mayoclinic.org/comment/846750/

Discussion: Who has had Distal Pancreatectomy and regretted it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2023

Comment

My husband had an embolization on his liver and it's almost 2 weeks, he's in alot...

https://connect.mayoclinic.org/comment/787279/

Discussion: NETs what to eat? What to avoid?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 21, 2022

Comment

@blee123: As you are aware, NET patients do not react the same to treatments; but my...

https://connect.mayoclinic.org/comment/1384449/

Discussion: Questions for surgeon-considerations choosing PRRT or surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1 3:46pm

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