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1,626 total results
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Discussions (128)
Comments (1,498)
Comment
Thanks or reaching out to me. I am being seen by a medical oncologist at University...
https://connect.mayoclinic.org/comment/827264/
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Discussion:
Lanreotide Manufacturers: anyone have experience with either?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 16, 2023
Comment
@merpreb Merry, Thanks for asking, I'm doing OK, right now. I need to have an upper...
https://connect.mayoclinic.org/comment/232764/
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Discussion:
Facing Cancer Recurrence, PTSD & Acknowledging Mental Health
Support Group:
Cancer: Managing Symptoms
Posted: Dec 10, 2018
Comment
Hello @matt2024 ! I too have pNET but with liver metastases. Had distal pancreatectomy ( with...
https://connect.mayoclinic.org/comment/1082347/
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Discussion:
Grade 1 Non-functioning (NF) NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 7 8:25am
Comment
I never heard of that test I have to google that , what I can tell...
https://connect.mayoclinic.org/comment/768133/
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Discussion:
Newly diagnosed - neuroendocrine tumor in intestines
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 1, 2022
Comment
Hi Teresa. Thanks for the nice welcome! As a result of elevated Alk P in my...
https://connect.mayoclinic.org/comment/907216/
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Discussion:
Looking for information on CAPTEM treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 3, 2023
Comment
Hi, Mark, I was diagnosed in 2007 with a carcinoid tumor that had wrapped around several...
https://connect.mayoclinic.org/comment/809267/
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Discussion:
Interested in hearing people's experiences with PRRT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 10, 2023
Comment
Hi Mark: I have commented before about my experience with PRRT, so will try not to...
https://connect.mayoclinic.org/comment/807548/
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Discussion:
Interested in hearing people's experiences with PRRT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 7, 2023
Comment
I’m not sure why things are offered in a different order Some things I read say...
https://connect.mayoclinic.org/comment/956820/
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Discussion:
Is everyone with pNETs on creon?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 31, 2023
Comment
Hi Colleen. I was have Nets in my cecum, small intestines, lymph nodes, liver and heart....
https://connect.mayoclinic.org/comment/971488/
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Discussion:
Should NET w/liver met patient stop rx that has Seratonin?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 28, 2023
Comment
I want to report in on my current situation. My GP referred me to a local...
https://connect.mayoclinic.org/comment/808662/
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Discussion:
Long Time Survivor With Concerns re Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 9, 2023
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