Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello! I have pNET, diagnosed in December 2022 (started losing weight and had a stroke). During...

https://connect.mayoclinic.org/comment/1285736/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19, 2025

Comment

Hi All, I have not been a member of the group for very long. My husband's...

https://connect.mayoclinic.org/comment/805330/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2, 2023

Comment

Hello, I was recently diagnosed with a PNET in my pancreas. I believe its stage 1...

https://connect.mayoclinic.org/comment/848296/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23, 2023

Comment

Hello! I have been there :). My pNet was discovered incidentally during a stroke work-up. Along...

https://connect.mayoclinic.org/comment/1061285/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3, 2024

Comment

Checking in, how did this go. Im new pNET diagnosis, and feel like I may be...

https://connect.mayoclinic.org/comment/1348935/

Discussion: Is enucleation appropriate for me?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2025

Comment

I wouldn't expect significant change other than stability. Lanreotide doesn't usually shrink tumors but it can...

https://connect.mayoclinic.org/comment/1324206/

Discussion: First scan after 3 months of lanreotidec

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10, 2025

Comment

My husband was diagnosed with stage 4 pnet with a 50% tumor burden in 2008. After...

https://connect.mayoclinic.org/comment/1477312/

Discussion: What does the future look like for a stage 4 NET patient?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8 9:42am

Comment

I also have a PNET and am being seen at the Mayo Clinic in Scottsdale/Phoenix. They...

https://connect.mayoclinic.org/comment/880457/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2023

Comment

I have a 1cm PNET in the tail of my pancreas as well. I would strongly...

https://connect.mayoclinic.org/comment/798724/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2023

Comment

@crawfordville I had balance issues. I am not sure, if they were from my metastatic pnet,...

https://connect.mayoclinic.org/comment/1484042/

Discussion: What does the future look like for a stage 4 NET patient?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16 2:32pm

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