Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

676 total results

Comment

I have two carcinoid tumors on my liver and they have been there for many years....

https://connect.mayoclinic.org/comment/1111420/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2024

Comment

My surgeon suspects that I have a carcinoid tumor in my intestine and is going to...

https://connect.mayoclinic.org/comment/802671/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28, 2023

Comment

Were your tumors growing while you were on Octreotide and that is why you were given...

https://connect.mayoclinic.org/comment/1344050/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 8, 2025

Comment

As if monthly shots aren’t enough to deal with, checking my last statement I noticed I...

https://connect.mayoclinic.org/comment/1489674/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23 6:52pm

Comment

In addition to my chronic cough, I had issues with mucous and shortness of breath upon...

https://connect.mayoclinic.org/comment/1250966/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5, 2025

Comment

@mieczyslaw @californiazebra Good morning. Like Mieczyslaw, I have the same diagnosis and am also taking Sandostatin...

https://connect.mayoclinic.org/comment/962656/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2023

Comment

Hello @pennypowell I'm glad to hear that she wants to see another oncologist. You mentioned that...

https://connect.mayoclinic.org/comment/799643/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2023

Comment

Three weeks after 2nd surgery I started the Octreotide injections; no adverse side effects except for...

https://connect.mayoclinic.org/comment/1269922/

Discussion: Has anyone had the peritoneal stripping surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30, 2025

Comment

I’ve been taking monthly Octreotide injections post op for a year & my SI NETS with...

https://connect.mayoclinic.org/comment/1447938/

Discussion: Anyone had positive results from Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2025

Comment

Anyone diagnosed with DIPNECH? I’ve had 3 injections of Octreotide so far. I started having GI...

https://connect.mayoclinic.org/comment/1193098/

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2024

Follow

9896

3 hours ago

Follow

8059

5 hours ago

Visiting Mayo Clinic

Follow

6664

6 hours ago

Pancreatic Cancer

Follow

3499

6 hours ago

Melanoma & Skin Cancer

Follow

992

8 hours ago