Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Neuroendocrine Tumors (NETs) Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
583 total results
All
Discussions (47)
Comments (536)
Comment
Thank you @hopeful33250, it is much appreciated. She has had a CT scan and a Tektrotyd...
https://connect.mayoclinic.org/comment/749330/
Copy link to clipboard
Discussion:
Support for Young Adult with carcinoid tumor on ovary
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 14, 2022
Comment
Hi @pattirushing It's a little bit hard for me to single out all the octreotide side...
https://connect.mayoclinic.org/comment/838730/
Copy link to clipboard
Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 6, 2023
Comment
Three weeks after 2nd surgery I started the Octreotide injections; no adverse side effects except for...
https://connect.mayoclinic.org/comment/1269922/
Copy link to clipboard
Discussion:
Has anyone had the peritoneal stripping surgery?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 30 9:18am
Comment
How did your embolization go? I have grade 2 metastatic to the liver with no known...
https://connect.mayoclinic.org/comment/1364518/
Copy link to clipboard
Discussion:
Spreading NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 5 5:56pm
Comment
Lots of variety for you. Interesting (and good) that all your nodules are in one lung....
https://connect.mayoclinic.org/comment/1229577/
Copy link to clipboard
Discussion:
Already on oxygen - diagnosed with DIPNECH: What happens next?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 4 6:28pm
Comment
@markmark007 Thank you for your prompt reply. Wonder if PRRT is the first treatment option prescribed...
https://connect.mayoclinic.org/comment/968905/
Copy link to clipboard
Discussion:
Octreotide Injections - Skipping One or More?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 22, 2023
Comment
My brother had PRRT after having surgery and Octreotide injections every 28 days. The tumor growth...
https://connect.mayoclinic.org/comment/877313/
Copy link to clipboard
Discussion:
Treatments for Carcinoids
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 12, 2023
Comment
@cmc188 I don't blame you for not wanting side effects without any benefit. I have had...
https://connect.mayoclinic.org/comment/1206123/
Copy link to clipboard
Discussion:
Typical Carcinoid Tumor in Lungs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 7 1:23pm
Comment
Only if the give me anesthesia will I have to get an injection of octreotide I...
https://connect.mayoclinic.org/comment/1322184/
Copy link to clipboard
Discussion:
Root canal without Epinephrine
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 7 9:58am
Comment
https://www.google.com/search?q=octreotide+not+containing+the+growth+of+neuroendocrine+cancer&rlz=1C1UEAD_enUS1116US1116&oq=octreotide+not+containing+the+growth+of+neuroendocrine+cancer&gs_lcrp=EgZjaHJvbWUyBggAEEUYOTIHCAEQIRiPAjIHCAIQIRiPAtIBCTIzODIzajBqN6gCALACAA&sourceid=chrome&ie=UTF-8 Above is the source. I have read that it is not 100% effective with everyone...
https://connect.mayoclinic.org/comment/1346165/
Copy link to clipboard
Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 11 8:36pm
First
Previous
...
6
7
8
9
10
11
12
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.