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Discussions (28)
Comments (269)
Comment
Last week was diagnosed with Neuro endocrine tumor "nodules.". It is referred as! Biopsy of carcinoid,...
https://connect.mayoclinic.org/comment/1021964/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 24, 2024
Comment
At 67 I was given my diagnosis of stage 3 lung Nets that has metastasized to...
https://connect.mayoclinic.org/comment/1019087/
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Discussion:
I have 3 nueroendocrine tumors in my left lung
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 20, 2024
Comment
@mlbschuler I am so excited to hear you are seeing Robert Ramirez! He seems the most...
https://connect.mayoclinic.org/comment/1012065/
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Discussion:
Neuroendocrine cells in Breast and Lungs DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 8, 2024
Comment
Hello @ocean3131 and welcome to the NETs support group on Mayo Connect. I'm sorry to hear...
https://connect.mayoclinic.org/comment/987604/
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Discussion:
Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 28, 2023
Comment
mir123 I was advised by thesecondopinion.org to be treated for my NET of the breast with...
https://connect.mayoclinic.org/comment/945761/
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Discussion:
Neuroendocrine cells in Breast and Lungs DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 11, 2023
Comment
Hello @kdgranger and welcome to the NETs support group on Mayo Connect. I am glad that...
https://connect.mayoclinic.org/comment/945546/
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Discussion:
Type 1 Neuroendocrine Tumor with no risk: What should I ask doctor?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 10, 2023
Comment
Yes, that was what was recommended. I consulted a surgeon and he also recommended radiation as...
https://connect.mayoclinic.org/comment/943959/
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Discussion:
Atypical Lung NET treated with radiation: What was your outcome?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 8, 2023
Comment
I have lung nets also. Had sbrt radiation for 2 of them and started sandostatin injections...
https://connect.mayoclinic.org/comment/939674/
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Discussion:
Atypical Lung NET treated with radiation: What was your outcome?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 1, 2023
Comment
Yes, I mean Lung Atypical NET
https://connect.mayoclinic.org/comment/938969/
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Discussion:
Atypical Lung NET treated with radiation: What was your outcome?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 29, 2023
Comment
Good morning The surgeon has very straightforward and honest. He said that surgery is the best...
https://connect.mayoclinic.org/comment/913416/
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Discussion:
How do I know somatostatin is in my system?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 15, 2023
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