Neuroendocrine Tumors (NETs) Support Group

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Comment

Great news, Scott! Are you having any treatment? Lanreotide/Somatuline? Thanks! Be well! Pavlina

https://connect.mayoclinic.org/comment/1083412/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9, 2024

Comment

Yes-Lanreotide, enzyme support have been helpful in managing symptoms and in managing growth/proliferation.

https://connect.mayoclinic.org/comment/775999/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

Comment

@destinjim: We are LIVE real humans! You have a problem with NETS and your Lanreotide injections?

https://connect.mayoclinic.org/comment/1462452/

Discussion: Anyone have problems with elevated blood pressure while on Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 17, 2025

Comment

Just seeing these replies, thank you so much for responding on the Lanreotide payment questions with...

https://connect.mayoclinic.org/comment/819231/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Comment

Sometimes there are special 3rd party advocates for patients on Lanreotide. I'm familiar with that. It's...

https://connect.mayoclinic.org/comment/1188028/

Discussion: Case manager provided by your health insurance plan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 10, 2024

Comment

Ill continue monthly Somatuline depot (Lanreotide) shot to contain cancer. Quarterly MRIs will determine future action...

https://connect.mayoclinic.org/comment/853246/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2023

Comment

That is wonderful news I get my second Followup scans on July 3 What are you...

https://connect.mayoclinic.org/comment/1338931/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 1, 2025

Comment

Hello @panorman3, You are asking good questions. Some members of this group have had a reduction...

https://connect.mayoclinic.org/comment/1251157/

Discussion: My carcinoid tumor is inoperable: What are the best ways to control?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5, 2025

Comment

Fortunately I don’t really have any negative reactions to the Lanreotide injections, just the day after...

https://connect.mayoclinic.org/comment/843588/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 15, 2023

Comment

@grammato3: My experience with Somatuline Depot 120mg injections for NET is definitively NOT the same as...

https://connect.mayoclinic.org/comment/1334543/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2025

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