Neuroendocrine Tumors (NETs) Support Group

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Comment

You are Right about being your own Advocate. That's how I found out I had DIPNECH....

https://connect.mayoclinic.org/comment/1065383/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2024

Comment

Hello and thank you for your comments. The surgery was very difficult, some complication's. My treatment...

https://connect.mayoclinic.org/comment/1045936/

Discussion: Newly Diagnosed Pancreatic NET awaiting Distal Pancrectomy

Support Group: Pancreatic Cancer

Posted: Apr 5, 2024

Comment

Yes, in the lungs, pretty scary, but slow growing, hopefully it stays that way! They changed...

https://connect.mayoclinic.org/comment/1003927/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2024

Comment

Welcome, @clintwlively. I've added your discussion to the Neuroendocrine Tumors (NETs) Support Group as well -...

https://connect.mayoclinic.org/comment/981815/

Discussion: Stage four high-grade neuroendocrine carcinoma

Support Group: Lung Cancer

Posted: Dec 16, 2023

Comment

@vtn Not sure -- when they do the tumor removal and perform pathology, they will know...

https://connect.mayoclinic.org/comment/911931/

Discussion: FDG PET scan vs. 68Ga DOTATATE PET scan for neuroendocrine cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2023

Comment

I just had my what has become a yearly as opposed to every three to six...

https://connect.mayoclinic.org/comment/854136/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

Comment

I do actually go to Mayo-pulmonologist. He said Dipnech is a label that is hard to...

https://connect.mayoclinic.org/comment/846032/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19, 2023

Comment

It was very helpful and encouraging to read your comments . I have not met or...

https://connect.mayoclinic.org/comment/845625/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19, 2023

Comment

I was diagnosed in January 2020, grade 3 NETs with tumors in liver, lungs, pancreas, bones,...

https://connect.mayoclinic.org/comment/828078/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2023

Comment

Since my diagnosis in 2002 at Mayo Clinic, I have had surgery to remove appendix, gallbladder,...

https://connect.mayoclinic.org/comment/137542/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2017

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