Neuroendocrine Tumors (NETs) Support Group

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Comment

I know that the surgery for me is the best option; however I also know that...

https://connect.mayoclinic.org/comment/900214/

Discussion: Newly diagnosed High-Grade Neuroendocrine Lung Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2023

Comment

I wish I had an answer for you, but I doubt that even your doctor can...

https://connect.mayoclinic.org/comment/867084/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

Comment

I have had three cycles, so far, of Lutathera, starting in December 2022. and have my...

https://connect.mayoclinic.org/comment/859738/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14, 2023

Comment

Dear puddknocker, I had a big para in the skull base in the vagus nerve, I...

https://connect.mayoclinic.org/comment/856706/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

Comment

Hi billyfeet, I had two NETs on the tail of my pancreas both over 2 cms....

https://connect.mayoclinic.org/comment/842530/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 13, 2023

Comment

In ‘07 I had a bronchial Carcinoid tumor removed. It is very slow growing but when...

https://connect.mayoclinic.org/comment/831739/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Comment

Nice to hear from a fellow Badger. Certianly hope all goes well for your wife's recovery...

https://connect.mayoclinic.org/comment/827544/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

Comment

That is interesting that you also were diagnosed with SIBO. I was on three different antibiotics...

https://connect.mayoclinic.org/comment/1279685/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2025

Comment

Hi I was diagnosed 2023 both lungs ,I have just joined this group as iv felt...

https://connect.mayoclinic.org/comment/1328460/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2025

Comment

Hello @elkeann and welcome to the NETs discussion on Mayo Connect. Facial flushing is often a...

https://connect.mayoclinic.org/comment/802512/

Discussion: Neck and face red flushing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

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