Neuroendocrine Tumors (NETs) Support Group

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Comment

My NET was discovered incidentally to an abdominal CT—it was a walnut-size tumor in the mesentery...

https://connect.mayoclinic.org/comment/829313/

Discussion: Has the NET found in my axilla or arm pit likely to have spread?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2023

Comment

Hi I’m Charlotte and I just became a member , I’m living with Net my first...

https://connect.mayoclinic.org/comment/747800/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 10, 2022

Comment

my primary NET was small intestine with secondary tumor in mesentery. Liver mets were detected 3...

https://connect.mayoclinic.org/comment/828228/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2023

Comment

Hi, I have a carcenoid tumor, inoperable, stage 4 cancer, in my Mesentery, it is in...

https://connect.mayoclinic.org/comment/748346/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2022

Comment

My PET scan was interpreted for my breast cancer recurrence. Everything was explained to me as...

https://connect.mayoclinic.org/comment/700289/

Discussion: PET scan clarification: Are the indicators cancer specific?

Support Group: Breast Cancer

Posted: Apr 18, 2022

Comment

Just went to the first oncologist appointment. After my doctor discussed with the hospital tumor board...

https://connect.mayoclinic.org/comment/812004/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Comment

Just scared, nervous, you know all the emotions. I wonder how long I will in the...

https://connect.mayoclinic.org/comment/750910/

Discussion: Just got the news… stage 2 Carcinoid tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2022

Comment

I’m so sorry to hear your mother is having these terrible symptoms, , I’m 61 and...

https://connect.mayoclinic.org/comment/940275/

Discussion: Mother might have neuroendocrine tumors, is being told she has IBS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

Comment

I had surgery in 2007 when they found the tumor. They removed it, along with most...

https://connect.mayoclinic.org/comment/898942/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

Comment

Hello @jlsgt and welcome to the NETs support group on Mayo Connect. NETs are a rare...

https://connect.mayoclinic.org/comment/1106357/

Discussion: NETS Mesentery, Small Bowel Resection, Lanreotide, Octreotide, Story

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2024

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