Neuroendocrine Tumors (NETs) Support Group

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Comment

My husband has a neuroendocrine tumor in the small intestine found by accident as they were...

https://connect.mayoclinic.org/comment/1272927/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2025

Comment

Here is an example as to why a NET specialist is necessary. My husband had an...

https://connect.mayoclinic.org/comment/917235/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2023

Comment

HI, I'm new to this site. In 2016 I had a bowell blockage that turned out...

https://connect.mayoclinic.org/comment/748393/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2022

Comment

Hi Kristy. I’ve only had mild flushing that lasts less than an hour. I haven’t taken...

https://connect.mayoclinic.org/comment/766985/

Discussion: My first sudden facial flush since NETs surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 29, 2022

Comment

@gustavo1975 I agree i had a NET removed from my small intestine in 2004 now 21...

https://connect.mayoclinic.org/comment/1490529/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25 5:08pm

Comment

I would definitely see a NET specialist, I have carcinoid syndrome , NET’s started in my...

https://connect.mayoclinic.org/comment/1294461/

Discussion: What should I do? Carcinoid symptoms but no answers.

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2025

Comment

I went years with a diagnosis of AVMs (abnormal blood vessels) of the small intestine. It...

https://connect.mayoclinic.org/comment/1461391/

Discussion: Did anyone else have a long struggle to getting a NETs diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2025

Comment

My first tumor was in the small intestine (2014) and successfully removed. The second tumor was...

https://connect.mayoclinic.org/comment/802787/

Discussion: What's your NETs treatment and surveillance protocol?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28, 2023

Comment

Forgive me. You say surgeons removed your small intestine? Twenty to twenty-two feet of the organ...

https://connect.mayoclinic.org/comment/1437257/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Nov 12, 2025

Comment

I had net tumor on small intestine was removed with 3ft of intestine on 5/22, looks...

https://connect.mayoclinic.org/comment/753325/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2022

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