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Neuroendocrine Tumors (NETs) Support Group

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Discussion
Y90 AND Captem Combo
https://connect.mayoclinic.org/discussion/y90/
Pnets KI67 25%. My husband had 3 captems cycles. The last cycle had toxicity and became sick. Anyone experience Y90 procedure for Pnets mets to...
Support Group: Neuroendocrine Tumors (NETs)
Last active: 2 days ago
Discussion
Questions for surgeon-considerations choosing PRRT or surgery
https://connect.mayoclinic.org/discussion/questions-for-surgeon-considerations-choosing-prrt-or-surgery/
I am considering surgery for neuroendocrine tumors metastatic to the liver. I have about 6-7 tumors that are visible on MRI. One surgeon told me...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Sep 1, 2025
Discussion
Small Intestine Resection
https://connect.mayoclinic.org/discussion/small-intestine-resection/
Hello Everyone I hope ALL is well today. It’s been a long time since I’ve been on here. I’ve been through a lot health wise...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Apr 23, 2025
Discussion
What do I need to know about NETS?
https://connect.mayoclinic.org/discussion/what-do-i-need-to-know-about-nets/
What do I need to know about NETS? I would like to know about this cancer. it started in small intestine and has gone to...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Sep 11, 2023
Discussion
Good news on 6-month follow-up for Small bowel NET with mets
https://connect.mayoclinic.org/discussion/sm-bowel-nets-with-mets/
Small bowel Nets with Mets, Grade 2, stage 4. I just had my 6 month follow up scan & the news is great! I have...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Feb 11 11:04am
Discussion
PNETs: What comes first? Surgery or try to shrink tumor with chemo?
https://connect.mayoclinic.org/discussion/broad-question/
Pancreatic nets on the tail moved to liver. It might be nonfuntional as it was found by accident and was shocking is an understatement.Do the...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Jan 25, 2025
Discussion
New and concerned about my wife.
https://connect.mayoclinic.org/discussion/new-and-concerned-about-my-wife/
Hello all. I am new here and somewhat awkward as I was once a cancer patient and now my precious wife of 38 blessed years...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Mar 20, 2025
Discussion
I recently had surgery to remove NET in small intestine
https://connect.mayoclinic.org/discussion/i-recently-had-surgery-to-remove-net-in-small-intestine/
They did a rt hemicolectomy and small bowel resection. They also did a wedge resection of my liver. They removed all of the tumor. Liver...
Support Group: Neuroendocrine Tumors (NETs)
Last active: May 12, 2025
Discussion
First scan after 3 months of lanreotidec
https://connect.mayoclinic.org/discussion/first-scan-after-3-months-of-lanreotidec/
My partner has pancreatic NET, grade 2 stage 4 w metastases in liver - she is having first post diagnosis scan after 3 months lanreotide....
Support Group: Neuroendocrine Tumors (NETs)
Last active: Jun 23, 2025
Discussion
Anyone have experience with Acites?
https://connect.mayoclinic.org/discussion/anyone-have-experience-with-acites/
I have been diagnosed with PNets grade 2 that metastasized to liver. The past few months I have been dealing with acites. Currently doctor is...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Dec 28, 2024