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Neuroendocrine Tumors (NETs) Support Group

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Discussion
New To NETS - Stage 4 / Grade 1
https://connect.mayoclinic.org/discussion/new-to-nets-stage-4-grade-1/
Hello, my fellow NETS friends, My name is Eileen. I am 42 years old and incidentally discovered I have Stage 4/Grade 1 NETS when I...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Apr 25 6:09am
Discussion
Anyone with an insulinoma have only therapies instead of surgery?
https://connect.mayoclinic.org/discussion/everolimus-versus-other-treatment-for-malignant-insulinoma/
I really recently got diagnosed with malignant insulinoma. About a year ago I collapsed at home and paramedics took me to the hospital (small town...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Aug 14, 2023
Discussion
68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic
https://connect.mayoclinic.org/discussion/68ga-dotatate-positron-emission-tomography-pet-now-at-mayo-clinic/
@amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727@dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes @ahtaylor @heidilynn4 @junebug15 @tomewilsonThis article regarding 68Ga DOTATATE Positron Emission Tomography...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Feb 1 1:21pm
Discussion
Pituitary Tumor (Questions about symptoms and treatment).
https://connect.mayoclinic.org/discussion/pituitary-tumor-questions-about-symptoms-and-treatment/
Hello, I have some questions. Hope someone with similar situation or medical professional could provide info. 55 YOM finally diagnosed with Mature Pluri-hormonal PIT1-Liniage Macro...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Aug 9 7:16pm