Support Groups

Neuroendocrine Tumors (NETs) Support Group

Lock icon Public Support Group
Clear Search
987 total results
Discussion
High risk surgery. Is it worth it?
I had my primary net removed, along with a right hemicolectomy, three other mets and 23 lymph nodes in Sept 2023.A follow up Petscan in...
Last active: Mar 29, 2024
Discussion
Recurrence of Neuroendocrine Tumor
Hi anyone with NETS recurrence? I had laparoscopy surgery in January 2024 to remove a tumor from my small intestines, and several sounding lymph nodes...
Last active: Mar 11, 2025
Discussion
New To NETS - Stage 4 / Grade 1
Hello, my fellow NETS friends, My name is Eileen. I am 42 years old and incidentally discovered I have Stage 4/Grade 1 NETS when I...
Last active: Apr 25, 2025
Discussion
68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic
@amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727@dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes @ahtaylor @heidilynn4 @junebug15 @tomewilsonThis article regarding 68Ga DOTATATE Positron Emission Tomography...
Last active: Feb 1, 2025
Discussion
Anyone with an insulinoma have only therapies instead of surgery?
I really recently got diagnosed with malignant insulinoma. About a year ago I collapsed at home and paramedics took me to the hospital (small town...
Last active: Aug 14, 2023
Discussion
Pituitary Tumor (Questions about symptoms and treatment).
Hello, I have some questions. Hope someone with similar situation or medical professional could provide info.55 YOM finally diagnosed with Mature Pluri-hormonal PIT1-Liniage Macro adenoma....
Last active: Aug 9, 2025