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Public Support Group 987 total results
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@dbamos1945, I appreciate you sharing your experience and your thoughts on Lanreotide and its benefits!
https://connect.mayoclinic.org/comment/1251146/
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Does long-term Lanreotide 120g monthly injections due any harm to patient or does it continue to...
Comment
Hi I am feeling fine overall. No more treatment just the lanreotide injections every 3 weeks...
Discussion
High risk surgery. Is it worth it?
I had my primary net removed, along with a right hemicolectomy, three other mets and 23 lymph nodes in Sept 2023.A follow up Petscan in...
Discussion
Recurrence of Neuroendocrine Tumor
Hi anyone with NETS recurrence? I had laparoscopy surgery in January 2024 to remove a tumor from my small intestines, and several sounding lymph nodes...
Discussion
New To NETS - Stage 4 / Grade 1
Hello, my fellow NETS friends, My name is Eileen. I am 42 years old and incidentally discovered I have Stage 4/Grade 1 NETS when I...
Discussion
68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic
@amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727@dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes @ahtaylor @heidilynn4 @junebug15 @tomewilsonThis article regarding 68Ga DOTATATE Positron Emission Tomography...
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Anyone with an insulinoma have only therapies instead of surgery?
I really recently got diagnosed with malignant insulinoma. About a year ago I collapsed at home and paramedics took me to the hospital (small town...
Discussion
Pituitary Tumor (Questions about symptoms and treatment).
Hello, I have some questions. Hope someone with similar situation or medical professional could provide info.55 YOM finally diagnosed with Mature Pluri-hormonal PIT1-Liniage Macro adenoma....
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