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221 total results
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Discussions (14)
Comments (207)
Comment
I was diagnosed with DIPNECH in June of last year. I have surgery to remove the...
https://connect.mayoclinic.org/comment/1244389/
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Discussion:
DIPNECH diagnosis. Has anyone had radiation?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 24 9:13am
Comment
@colleenyoung Hi Colleen, I'm so glad you posted this article. Believe it or not, it was...
https://connect.mayoclinic.org/comment/1055394/
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Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 22, 2024
Comment
Hi @queengemini16 What is your surgeon’s and oncologist’s recommended course of action? Are you planning to...
https://connect.mayoclinic.org/comment/1006882/
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Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 30, 2024
Comment
I have GERD too. Before my DIPNECH and lung NETs was diagnosed even though we knew...
https://connect.mayoclinic.org/comment/1329913/
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Discussion:
DIPNCEH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 18 12:24pm
Comment
Hi @californiazebra This tumor that was ablated was the only one that the dotatate pet ‘lit’...
https://connect.mayoclinic.org/comment/1071219/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 19, 2024
Comment
Tom, that’s frustrating about your incidental findings too. I hope both conditions were successfully treated. I...
https://connect.mayoclinic.org/comment/958681/
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Discussion:
Anyone have a small pancreatic IPMN cyst that turned out to be cancer?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 3, 2023
Comment
Typical carcinoids and DIPNECH are not associated with smoking. The majority of cases are non-smokers and...
https://connect.mayoclinic.org/comment/1288434/
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Discussion:
I am 75 and have carcinoid tumors NET in lungs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 23 5:59pm
Comment
I had a large one in my left lower lobe. Almost 2cm and they weren't sure...
https://connect.mayoclinic.org/comment/1318419/
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Discussion:
Diagnosis Difficulties
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 2 8:50am
Comment
Hi @donnapeck51 I’m sorry to hear about your Merkel cell carcinoma. I’m not a doctor but...
https://connect.mayoclinic.org/comment/1172492/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 12, 2024
Comment
@mieczyslaw If you have a lot of tumorlets in both lungs it sounds suspect for DIPNECH....
https://connect.mayoclinic.org/comment/962492/
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Discussion:
Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 10, 2023
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