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Discussions (128)
Comments (1,499)
Comment
@outlawcancer It was great to hear to you share your experience with your surgery. Would love...
https://connect.mayoclinic.org/comment/817467/
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Discussion:
PNET Surgery: My recovery journey
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 26, 2023
Comment
I was diagnosed with NETs last year. My case is a bit unusual since it seems...
https://connect.mayoclinic.org/comment/804124/
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Discussion:
High or Fluctuating Chromogranin A Level: What does it mean?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 31, 2023
Comment
Hello @marilyn2525 I so appreciate the information you provided. I have had three surgeries for NETs...
https://connect.mayoclinic.org/comment/134694/
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Discussion:
NET - Insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 7, 2019
Comment
I did 6 months of chemo, every 2 weeks. I never heard of it shorting your...
https://connect.mayoclinic.org/comment/817375/
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Discussion:
NETs: Competing Pathologies--how to sort it all out?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 26, 2023
Comment
Teresa and @carcinoid, Dr Anthony told me the 24-hr urine test was not helpful for rectal...
https://connect.mayoclinic.org/comment/184538/
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Discussion:
Carcinoid Cancer and working
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 20, 2018
Comment
Hi, Did they do a PET scan ? I have stg 4 grade 1 Pnet and...
https://connect.mayoclinic.org/comment/902658/
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Discussion:
Should I want more treatment after pancreatic nets with lymph nodes?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 26, 2023
Comment
My surgeon told me the same thing. My surgery was successful...distal pancreatectomy, spleenectomy, and cholecystectomy. Tissue...
https://connect.mayoclinic.org/comment/977114/
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Discussion:
Learn About NETs and monthly meetings
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 8, 2023
Comment
i actually feel good since surgery. I have had check up every 6 months since surgery....
https://connect.mayoclinic.org/comment/1065049/
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Discussion:
High or Fluctuating Chromogranin A Level: What does it mean?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 9 5:52pm
Comment
@kim1965 , I had similar surgery ( distal pancreatectomy, with gallbladder, spleen removal, some metastatic spots...
https://connect.mayoclinic.org/comment/817936/
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Discussion:
PNET Surgery: My recovery journey
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 27, 2023
Comment
Hello @hollywood817 and welcome to the NETs discussion group on Mayo Connect. I see from your...
https://connect.mayoclinic.org/comment/804933/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 1, 2023
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