Neuroendocrine Tumors (NETs) Support Group

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Comment

I also have stage 4 Neuroendocrine in the body pancreas along with small spots on my...

https://connect.mayoclinic.org/comment/796911/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15, 2023

Comment

Eating well but have lost around 12 pounds since start of Ocerotide in April. In retrospect...

https://connect.mayoclinic.org/comment/720098/

Discussion: New to NETs: Found lesions on liver during a health check

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 22, 2022

Comment

Just take a deep breath. It can be a long process. I have a metastatic Pnet...

https://connect.mayoclinic.org/comment/1290592/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 26 3:26pm

Comment

Hi Tom, I follow Ronny Allen from the U.K. and he is very helpful. I have...

https://connect.mayoclinic.org/comment/1255078/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10 8:01pm

Comment

and the CT that local reading identified a new liver met, but Mayo review of that...

https://connect.mayoclinic.org/comment/1117858/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 4, 2024

Comment

Hello @siluka and welcome to Mayo Connect. Your concern about the CgA levels and the lesions...

https://connect.mayoclinic.org/comment/1064999/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 9, 2024

Comment

61 yr old patient, liver mets after 7 months of whipples. Now under chemo. Not able...

https://connect.mayoclinic.org/comment/1062766/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 5, 2024

Comment

Hello @jhilbish, I'm glad to hear that your husband's liver embolization is over now. Will be...

https://connect.mayoclinic.org/comment/787656/

Discussion: NETs what to eat? What to avoid?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2022

Comment

Interesting. I am on my second cancer - fist lung five years ago, now liver. Now...

https://connect.mayoclinic.org/comment/232728/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Comment

University of Michigan Roger Cancer Center is probably the most experienced site in histotripsy that was...

https://connect.mayoclinic.org/comment/1348707/

Discussion: Metastasis to the Liver Caudate Region (Segment 1)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15 10:42am

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