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266 total results
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Discussions (32)
Comments (234)
Comment
Mikhailsapenko, my experience was similar to yours in that I had been in/out of the ER...
https://connect.mayoclinic.org/comment/1194781/
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Discussion:
Still have symptoms after surgery
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 21, 2024
Comment
@isaiah5417nt, when I had a blockage in my small intestine in 2018, they also found one...
https://connect.mayoclinic.org/comment/835728/
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Discussion:
Anyone have a stomach NET?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 1, 2023
Comment
I’m so glad you reached out to us with your swelling concerns. My treatment of Somatuline...
https://connect.mayoclinic.org/comment/883717/
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Discussion:
Anyone have swelling with liver metastases?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 23, 2023
Comment
I’m having similar problems and am no sure whether it’s the lanreotide or the 15” removed...
https://connect.mayoclinic.org/comment/858717/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 12, 2023
Comment
Hi. I too am on a watch and wait recommendation and am very uncomfortable with that....
https://connect.mayoclinic.org/comment/848478/
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Discussion:
Has anyone chosen the Watch and Wait and regretted that choice?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 24, 2023
Comment
I hope your issues resolve quickly and the plan goes well. This past year I've had...
https://connect.mayoclinic.org/comment/749896/
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Discussion:
Intestinal Blockage with NETs: Anyone else?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 15, 2022
Comment
My husband was diagnosed 2 years ago after finding a 2” tumor pressing on his spinal...
https://connect.mayoclinic.org/comment/885643/
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Discussion:
NETs: Scheduled for small intestine resection: What to expect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 26, 2023
Comment
thanks for the suggestions. I checked the info on Creon and I am on Allopurinol for...
https://connect.mayoclinic.org/comment/1118272/
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Discussion:
Everolimus for multiple Neuroendocrine tumors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 5, 2024
Comment
My tumors started in the small intestine and metastasized to the liver before I was diagnosed....
https://connect.mayoclinic.org/comment/1072655/
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Discussion:
Flushing with NETS lung cancer?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 22, 2024
Comment
Question… I am having surgery the first week of November to remove roughly 12 inches of...
https://connect.mayoclinic.org/comment/764338/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 23, 2022
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