Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi ... My wife is scheduled to see her doctor after being diagnosed with NETS metastasized...

https://connect.mayoclinic.org/comment/1529005/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17 11:29am

Comment

Recently diagnosed with NET of small intestine. I had a bioposy of it ...and its Well-differentiated...

https://connect.mayoclinic.org/comment/1349413/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2025

Comment

My husband has a neuroendocrine tumor in the small intestine found by accident as they were...

https://connect.mayoclinic.org/comment/1272924/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2025

Comment

In 2007, my doctor discovered the cause of my excruciating abdominal pain, a tumor that had...

https://connect.mayoclinic.org/comment/901146/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2023

Comment

I had the same situation as you do. Net tumor went from my small intestine to...

https://connect.mayoclinic.org/comment/1434068/

Discussion: New NET in liver and small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 8, 2025

Comment

Hello Teresa, I had a CT scan in the hospital not a PET scan. The scan...

https://connect.mayoclinic.org/comment/940494/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

Comment

Hello @mikhailtsapenko and welcome to NETs support group on Mayo Connect. I am sorry to hear...

https://connect.mayoclinic.org/comment/1193929/

Discussion: Still have symptoms after surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2024

Comment

On a Thursday a MRI on my prostrate showed suspicious cancer in the small intestine my...

https://connect.mayoclinic.org/comment/750473/

Discussion: Just got the news… stage 2 Carcinoid tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2022

Comment

Hi, I was recently diagnosed with, carcinoid syndrome, the tumors (NET) started in my small intestine...

https://connect.mayoclinic.org/comment/815553/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22, 2023

Comment

Yes I was given pain meds.. took several days for them to get it under control...

https://connect.mayoclinic.org/comment/1371834/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 16, 2025

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