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103 total results
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Discussions (17)
Comments (86)
Comment
@briea Welcome to the Mayo Clinic Connect. You will find lots of support and people who...
https://connect.mayoclinic.org/comment/914666/
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Discussion:
Anyone with an insulinoma have only therapies instead of surgery?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 17, 2023
Comment
They did a pet scan right before surgery, and did not find any metastasis to my...
https://connect.mayoclinic.org/comment/902877/
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Discussion:
Should I want more treatment after pancreatic nets with lymph nodes?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 27, 2023
Comment
Hi all, I’m new to this forum and this condition. Started with GI pain and inconsistent...
https://connect.mayoclinic.org/comment/876745/
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Discussion:
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 11, 2023
Comment
I have had 11 tumors removed from pancreas in 2 surgeries. They were grade 2 tumors....
https://connect.mayoclinic.org/comment/843298/
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Discussion:
Recurrence in Liver after Whipple
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 14, 2023
Comment
Hi @mayberries, welcome. I see that you have recently been diagnosed with pancreatic NET and you...
https://connect.mayoclinic.org/comment/804962/
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Discussion:
What's the best way to detect liver metastases?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 1, 2023
Comment
I have just returned from my week at Mayo so I wanted to post a quick...
https://connect.mayoclinic.org/comment/593410/
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Discussion:
NET - Insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 10, 2021
Comment
I ve had awareness of my PANCREATIC NET for a year plus. Rare, with established core...
https://connect.mayoclinic.org/comment/257018/
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Discussion:
Interested in hearing people's experiences with PRRT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 22, 2020
Comment
Hello - one year ago August of ‘23 I was diagnosed with Acinar Pancreatic Cancer with...
https://connect.mayoclinic.org/comment/1166095/
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Discussion:
Anyone have Pancreatic Acinar Cell Carcinoma?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 1, 2024
Comment
I have functioning gastrinomas the lanreotide helped my symptom control significantly and I started right after...
https://connect.mayoclinic.org/comment/1296743/
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Discussion:
Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 4 4:46pm
Comment
Hi - PNet diagnosis in September of ‘20 …. (4) total tumors …. Three in pancreas...
https://connect.mayoclinic.org/comment/1304507/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 15 7:57am
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