Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

124 total results

Comment

Seems like it is functional gastrinoma tumor and so is Jon with symptoms of diaharrea. Whipple...

https://connect.mayoclinic.org/comment/1288593/

Discussion: Gastrinomas and Whipple procedure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2025

Comment

Hi Eileen; I’m sure you’re in complete shock with your diagnosis. Your case sounds a lot...

https://connect.mayoclinic.org/comment/1284362/

Discussion: New To NETS - Stage 4 / Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2025

Comment

Hello how are you? I'm sorry you had to go through this. I tell you, my...

https://connect.mayoclinic.org/comment/1237580/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2025

Comment

I had surgery in 2016 (8-years ago) to remove tumor / mass at appendix and five...

https://connect.mayoclinic.org/comment/1142526/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2024

Comment

I have a primary pancreatic net with metastasis to the liver functioning gastrinomas. I was first...

https://connect.mayoclinic.org/comment/1035496/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2024

Comment

@briea Welcome to the Mayo Clinic Connect. You will find lots of support and people who...

https://connect.mayoclinic.org/comment/914666/

Discussion: Anyone with an insulinoma have only therapies instead of surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 17, 2023

Comment

They did a pet scan right before surgery, and did not find any metastasis to my...

https://connect.mayoclinic.org/comment/902877/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2023

Comment

Hi all, I’m new to this forum and this condition. Started with GI pain and inconsistent...

https://connect.mayoclinic.org/comment/876745/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 11, 2023

Comment

I have had 11 tumors removed from pancreas in 2 surgeries. They were grade 2 tumors....

https://connect.mayoclinic.org/comment/843298/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2023

Comment

Hi @mayberries, welcome. I see that you have recently been diagnosed with pancreatic NET and you...

https://connect.mayoclinic.org/comment/804962/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

1
…
5
6
7
8
9
10

Follow

10284

12 minutes ago

Follow

8394

5 hours ago

Visiting Mayo Clinic

Follow

6935

9 hours ago

Cancer: Managing Symptoms

Follow

5826

9 hours ago

Digestive Health

Follow

18706

10 hours ago