Neuroendocrine Tumors (NETs) Support Group

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Hi @amd12 -- Are you still using this message board? Just wondering what the status of...

https://connect.mayoclinic.org/comment/867413/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2023

Comment

Could it be heart related, not lungs? I'm being evaluated for Carcinoid Heart Disease due to...

https://connect.mayoclinic.org/comment/863188/

Discussion: Net unknown cause of breathing problems

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20, 2023

Comment

Hi @kristin3, I have over 50 typical carcinoid tumors/DIPNECH across both lungs. Because I have so...

https://connect.mayoclinic.org/comment/849316/

Discussion: Concerns after lobectomy for carcinoid tumor in lung

Support Group: Lung Cancer

Posted: Apr 25, 2023

Comment

Thanks for all that info. I will certainly look up the website you suggested. The carcinoids...

https://connect.mayoclinic.org/comment/845019/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

Comment

Hi mcohan, I recommend LACNETS.org for tons of info on NETS. It's a support organization, not...

https://connect.mayoclinic.org/comment/844935/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

Comment

Sorry to hear about your NETS diagnosis. Check out LACNETS.org and you will find so much...

https://connect.mayoclinic.org/comment/842248/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2023

Comment

Hi @dak10 and @mimmy. Thank you for sharing your lung NETs info. I also have typical...

https://connect.mayoclinic.org/comment/835869/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2023

Comment

I am new to this forum. Have 2 carcinoid tumors in left lung that are inoperable....

https://connect.mayoclinic.org/comment/831583/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Comment

Hello @paula7 and welcome to Mayo Clinic Connect. Most folks with a diagnosis of neuroendocrine (NET)...

https://connect.mayoclinic.org/comment/828882/

Discussion: Anyone else got neuroendocrine cervical cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2023

Comment

Hello @dak10, I so appreciate hearing from you again with some more information on your journey...

https://connect.mayoclinic.org/comment/827367/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

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