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583 total results
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Discussions (47)
Comments (536)
Comment
I have been on Lanreotide for 11 months now, and Octreotide for the previous 13 years....
https://connect.mayoclinic.org/comment/826838/
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Discussion:
Newly diagnosed-Primary Malignant Neuroendocrine of Lung
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 16, 2023
Comment
Hello 👋🏻 My treatment was with Octreotide (Sandostatina LAR30) One each 4 weeks, 18 doses. Between...
https://connect.mayoclinic.org/comment/794591/
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Discussion:
PET Ga-68 Scan Scheduling vs. Most Recent Lanreotide Injection
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 9, 2023
Comment
@tennisfan I hope that the Octreotide injections are helpful to you in managing the carcinoid symptoms...
https://connect.mayoclinic.org/comment/806381/
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Discussion:
Newly diagnosed - neuroendocrine tumor in intestines
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 4, 2023
Comment
Hi Teresa, Thanks for following up. I have surgery scheduled for October 21st to have the...
https://connect.mayoclinic.org/comment/636553/
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Discussion:
Possible NET with No Evidence of Tumor: Mediastinal Mass
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 18, 2021
Comment
BTW, I’m in the Cam2029 Clinical Trial at Mayo/Jacksonville and tolerating biweekly octreotide injections very well...
https://connect.mayoclinic.org/comment/1065502/
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Discussion:
Grade 1 Non-functioning (NF) NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 10, 2024
Comment
My octreotide injections are scheduled every 28 days, and my next 3 are on the calendar.....
https://connect.mayoclinic.org/comment/901161/
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Discussion:
How long do I wait between injections and PET scans.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 24, 2023
Comment
Thanks @hopeful33250 ! The PET was negative, I did a 5-day trial of short acting Octreotide...
https://connect.mayoclinic.org/comment/271268/
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Discussion:
Possible NET with No Evidence of Tumor: Mediastinal Mass
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 21, 2019
Comment
@mieczyslaw @californiazebra Good morning. Like Mieczyslaw, I have the same diagnosis and am also taking Sandostatin...
https://connect.mayoclinic.org/comment/962656/
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Discussion:
Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 11, 2023
Comment
My surgeon suspects that I have a carcinoid tumor in my intestine and is going to...
https://connect.mayoclinic.org/comment/802671/
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Discussion:
Neuroendocrine tumor: What tests are used for diagnosis?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 28, 2023
Comment
I was diagnosed in April 2002 and have had monthly Sandostatin injections starting in 2008 and...
https://connect.mayoclinic.org/comment/90133/
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Discussion:
I have recently been diagnosed with my third neuroendocrine tumor
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 10, 2016
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