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Public Support Group 982 total results
Comment
@tattyk, checking in. How is it going so far with lanreotide treatment? How are you doing?
https://connect.mayoclinic.org/comment/1113992/
Comment
Not sure if IPSEN Cares program for Lanreotide injections is available in your area but you...
Comment
It sounds like the Octreotide therapy works for you. Was there any surgery done before the...
Discussion
Neuroendocrine Tumors (NETs) Q&A with a NETs Expert
Just watched an hour long Q&A session on NETs with Dr. Eric Liu who is dedicated to NETs at his clinic in Denver. The questions...
Discussion
2nd 3 month follow up
My wife has well differentiated, grade 2 stage 4 NET to the terminal illeum (which was removed) w mets to the liver and pancreas -...
Discussion
Liver and Pancreas Stable
Blessings all. I am so encouraged by the many posts and wonderful input as my wife and I are now taking a new turn with...
Discussion
Small Intestine Resection
Hello Everyone I hope ALL is well today. It’s been a long time since I’ve been on here. I’ve been through a lot health wise...
Discussion
PRRT treatment how does it work?
My husband has small bowel Neuroendocrine cancer that had metastasized to liver, lymph nodes,and bones he had surgery to remove primary tumor in small bowel,...
Discussion
GI NET attached to pancreas supposedly non-producing
I had surgery to remove 3 nets from my bowel in September 2023One was attached to my pancreasThe primary was in my illeum and the...
Discussion
Carcinoid Crisis Questions
My wife has well differentiated, grade 2 stage 4 NET to the terminal illeum (which was removed) w/ mets to the liver and pancreas which...
Discussion
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Hi everyone. I am new to the group and wondered what kinds of symptoms others with Pnet go through. I was diagnosed just under a...
Discussion
NET's and possible liver transplant discussion
Today, during our meeting with our NET cancer team, we were reviewing the results from CT, MRI, and PET scan, and in general we are...
Discussion
NETs: Scheduled for small intestine resection: What to expect?
I was diagnosed with NET 2 weeks ago. I had symptoms of obstructed bowel which led to a CT scan showing a tumor in mesentery,...
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