Neuroendocrine Tumors (NETs) Support Group

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Comment

Hey Yes the CT was ordered because of suspected diverticulitis. But the net in my ilium...

https://connect.mayoclinic.org/comment/1010732/

Discussion: GI NET attached to pancreas supposedly non-producing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2024

Comment

lots! And trying to get my oncologist or surgeon to call is not working! I have...

https://connect.mayoclinic.org/comment/1003419/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

Comment

Hi @hopeful33250 and thanks for reaching out. I went to the hospital on August 30th with...

https://connect.mayoclinic.org/comment/942618/

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2023

Comment

My metestatic carcinoid cancer was discovered by accident when my GYN was doing an endoscopic look...

https://connect.mayoclinic.org/comment/827308/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

Comment

I had a colonoscopy, the Doctor noticed what he called a polypoid. He took a biopsy...

https://connect.mayoclinic.org/comment/1264382/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2025

Comment

He has never had symptoms of carcinoid syndrome yet so we are hopeful there are no...

https://connect.mayoclinic.org/comment/137533/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2017

Comment

Morning! My primary was on my ilieum which metastasized to my liver and pancreas. I was...

https://connect.mayoclinic.org/comment/897949/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2023

Comment

My wife (NETs) and I are very interested in nutrition. In 2015 and 2016 she had...

https://connect.mayoclinic.org/comment/275687/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2019

Comment

I haven’t been on to update as it seems like we got to the mountain but...

https://connect.mayoclinic.org/comment/1444451/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2025

Comment

Thank you for the link on eating. It was interesting. The surgery in 1995 was for...

https://connect.mayoclinic.org/comment/1397037/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2025

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