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221 total results
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Discussions (14)
Comments (207)
Comment
Welcome @triveraderubio As you likely know "diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) is a rare...
https://connect.mayoclinic.org/comment/772200/
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Discussion:
Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 11, 2022
Comment
My dipnech was also found by chance, I had fallen down some steps and landed on...
https://connect.mayoclinic.org/comment/1143736/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 18, 2024
Comment
You are Right about being your own Advocate. That's how I found out I had DIPNECH....
https://connect.mayoclinic.org/comment/1065383/
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Discussion:
Neuroendocrine cells in Breast and Lungs DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 10, 2024
Comment
Hi @netnan, I was diagnosed with a 17mm typical carcinoid early this year. I also have...
https://connect.mayoclinic.org/comment/1107076/
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Discussion:
Sarcoidosis and Lung NET, upcoming surgery
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 17, 2024
Comment
OMG. Yes yes yes so much the same. I was told by my pulmonary doctor that...
https://connect.mayoclinic.org/comment/1329979/
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Discussion:
DIPNCEH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 18 1:58pm
Comment
Do you see a pulmonologist or oncologist? Reason I’m asking I was told there’s only 1...
https://connect.mayoclinic.org/comment/853997/
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Discussion:
What do I need to know about NETS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 3, 2023
Comment
I also have NET and DIPNECH. Both were found in August of 2024 when my tumor...
https://connect.mayoclinic.org/comment/1288119/
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Discussion:
I am 75 and have carcinoid tumors NET in lungs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 23 10:19am
Comment
Hello @ocean3131 and welcome to the NETs support group on Mayo Connect. I'm sorry to hear...
https://connect.mayoclinic.org/comment/987604/
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Discussion:
Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 28, 2023
Comment
I would strongly request a PET. I've had one recently to see if my dipnech tumours...
https://connect.mayoclinic.org/comment/1142721/
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Discussion:
Neuroendocrine cells in Breast and Lungs DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 16, 2024
Comment
Are you taking a treatment? So interesting, these various symptoms, like GERD! I had it for...
https://connect.mayoclinic.org/comment/1330063/
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Discussion:
DIPNCEH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 18 4:06pm
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