Neuroendocrine Tumors (NETs) Support Group

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Comment

I’ll speak to 3 & 4. My wife with NETs (ileum), 50 METS to liver has...

https://connect.mayoclinic.org/comment/134661/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2018

Comment

Lanreotide monthly since dec 2023. NET currently stable after scan in May . Diagnosed in Oct...

https://connect.mayoclinic.org/comment/1104370/

Discussion: What is a normal range for Chromogranin A test? Mine was 99 in 2021.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12 12:33pm

Comment

Hello Karen (@kjstein) Welcome to Mayo Clinic Connect! I am glad to hear that you have...

https://connect.mayoclinic.org/comment/713478/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2, 2022

Comment

Hi, I too have NETs that were discovered in my ileum after being in the ER...

https://connect.mayoclinic.org/comment/777826/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2022

Comment

Thank you. I do have a pain doctor at Mayo - for another (random?) nerve pain...

https://connect.mayoclinic.org/comment/905585/

Discussion: Pain relief when lying flat?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 1, 2023

Comment

Hi Teresa. I now know that I am NET. I didn't even know what that was...

https://connect.mayoclinic.org/comment/776779/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2022

Comment

Wow! You are truly a determined person and a good example for me. I have often...

https://connect.mayoclinic.org/comment/854458/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

Comment

Hi. My primary was found in the terminal ileum. Metastasis to nodes, liver, and other organs.i...

https://connect.mayoclinic.org/comment/160176/

Discussion: Carcinoid Cancer of the Liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 25, 2017

Comment

My husband has been on CAP and TEM and also a monthly injection of lanreotide for...

https://connect.mayoclinic.org/comment/885058/

Discussion: Looking for information on CAPTEM treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25, 2023

Comment

I, too, have high grade (2/3) metastatic NETs—liver, pancreas, lungs, bone, adrenal gland, parotid gland. I...

https://connect.mayoclinic.org/comment/811356/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2023

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