Neuroendocrine Tumors (NETs) Support Group

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Comment

Dear all, I was diagnosed with NET in 2017. Low grade. Non functional and asymptomatic. Until...

https://connect.mayoclinic.org/comment/755918/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2022

Comment

Hello @cu2 We have some other members who have discussed liver tumors related to NETs. I'm...

https://connect.mayoclinic.org/comment/739629/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 20, 2022

Comment

Hello @sophiarose, I am glad that you posted about your concerns. We have one member, @trivia,...

https://connect.mayoclinic.org/comment/795430/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2023

Comment

Whatever the findings are, I had the same feeling when I went to Mayo in Rochester...

https://connect.mayoclinic.org/comment/837997/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5, 2023

Comment

I was diagnosed with Neuroendocrine tumors in my liver and small intestines back in December 2022....

https://connect.mayoclinic.org/comment/870969/

Discussion: Neuroendocrine tumor and carcinoid tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2, 2023

Comment

Thank you so much for responding! Whatever you feel you willing to share around the decision...

https://connect.mayoclinic.org/comment/949287/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 17, 2023

Comment

Hello. My thoughts are with you. My husband has had 3 of 4 lutathera treatments (PRRT)...

https://connect.mayoclinic.org/comment/1074467/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25 12:59pm

Comment

My husband had an embolization on his liver and it's almost 2 weeks, he's in alot...

https://connect.mayoclinic.org/comment/787279/

Discussion: NETs what to eat? What to avoid?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 21, 2022

Comment

I went through that surgery ( and hysterectomy at the same time due to endometrial cancer)....

https://connect.mayoclinic.org/comment/846750/

Discussion: Who has had Distal Pancreatectomy and regretted it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2023

Comment

Hi @millds, thank you for being so willing to share with @kim1965 by email. It's best...

https://connect.mayoclinic.org/comment/949985/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2023

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