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774 total results
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Discussions (69)
Comments (705)
Comment
Yes to all, flushing also, extreme bouts Diarrhea with mucous. Itching of skin, all problems had...
https://connect.mayoclinic.org/comment/1022130/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 25, 2024
Comment
Hello @mlbschuler, I moved your discussion and combined it with an existing discussion titled, "Neuroendocrine cells...
https://connect.mayoclinic.org/comment/1004013/
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Discussion:
Neuroendocrine cells in Breast and Lungs DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 26, 2024
Comment
@mieczyslaw If you have a lot of tumorlets in both lungs it sounds suspect for DIPNECH....
https://connect.mayoclinic.org/comment/962492/
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Discussion:
Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 10, 2023
Comment
I know that the surgery for me is the best option; however I also know that...
https://connect.mayoclinic.org/comment/900214/
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Discussion:
Newly diagnosed High-Grade Neuroendocrine Lung Carcinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 22, 2023
Comment
Hi @hopeful33250. Our story is a lot of drama so far. Around Christmas my husband had...
https://connect.mayoclinic.org/comment/872940/
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Discussion:
Carcinoid liver cancer/carcinoid heart disease/ kidney damage
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 5, 2023
Comment
I wish I had an answer for you, but I doubt that even your doctor can...
https://connect.mayoclinic.org/comment/867084/
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Discussion:
Life expectancy with NETs and lifetyle as it progresses
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 26, 2023
Comment
I have had three cycles, so far, of Lutathera, starting in December 2022. and have my...
https://connect.mayoclinic.org/comment/859738/
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Discussion:
4 treatment options from my doctor, which one should I start with?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 14, 2023
Comment
Dear puddknocker, I had a big para in the skull base in the vagus nerve, I...
https://connect.mayoclinic.org/comment/856706/
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Discussion:
Paraganglioma / Carotid Body Tumor Question
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 8, 2023
Comment
Hi billyfeet, I had two NETs on the tail of my pancreas both over 2 cms....
https://connect.mayoclinic.org/comment/842530/
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Discussion:
Has anyone chosen the Watch and Wait and regretted that choice?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 13, 2023
Comment
In ‘07 I had a bronchial Carcinoid tumor removed. It is very slow growing but when...
https://connect.mayoclinic.org/comment/831739/
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Discussion:
Lung nodule could be slow growing carcinoid: Watch and wait is scary
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 25, 2023
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