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2,247 total results
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Discussions (191)
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Comment
I just had scans on Monday. Everything is stable, and they even noted some shrinkage in...
https://connect.mayoclinic.org/comment/1123512/
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Discussion:
Everolimus for multiple Neuroendocrine tumors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 14, 2024
Comment
Allow me to be the acronym buster for this discussion: - SSA = Somatostatin analogue https://www.cancerresearchuk.org/about-cancer/neuroendocrine-tumours-nets/treatment/somatostatin-analogues/what-are...
https://connect.mayoclinic.org/comment/1001311/
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Discussion:
Statistics on progression free survival while on SSA / Lanreotide
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 21, 2024
Comment
I was diagnosed with NET’s December, 2022. Started the same, small intestines and spread to the...
https://connect.mayoclinic.org/comment/842035/
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Discussion:
What do I need to know about NETS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 12, 2023
Comment
I am in Australia and waiting to see what the next step for me (lesion liver)...
https://connect.mayoclinic.org/comment/1089295/
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Discussion:
High or Fluctuating Chromogranin A Level: What does it mean?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 18, 2024
Comment
I totally agree with what you are saying! My liver enzymes (ALT, AST) are almost double...
https://connect.mayoclinic.org/comment/1009304/
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Discussion:
Anyone have hair loss with lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 4, 2024
Comment
I had surgery in 2018 for t-10 lesion but since have had cyberknife on additional spine...
https://connect.mayoclinic.org/comment/952169/
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Discussion:
Anyone have a neuroendocrine tumor (NET) in the spine?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 22, 2023
Comment
I go to the Mayo Clinic 2-4 times a year for followup. I also have carcinoid...
https://connect.mayoclinic.org/comment/85558/
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Discussion:
Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 10, 2016
Comment
When my cancer was found, and they removed the tumor in my ileum, this is what...
https://connect.mayoclinic.org/comment/1285797/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 20 6:05am
Comment
I think foods high in "amines" can trigger carcinoid syndrome or similar effects. I have a...
https://connect.mayoclinic.org/comment/1231773/
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Discussion:
How does Alcohol use affect Liver NET?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 7 4:59pm
Comment
Hi all, I’m new to this forum and this condition. Started with GI pain and inconsistent...
https://connect.mayoclinic.org/comment/876745/
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Discussion:
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 11, 2023
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