Neuroendocrine Tumors (NETs) Support Group

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Comment

Wow, hang in there. My situation was that i had a blockage caused by the SINET....

https://connect.mayoclinic.org/comment/919988/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 27, 2023

Comment

My husband did great with the PRRT 4 treatments. He never had any scans orMRI to...

https://connect.mayoclinic.org/comment/1048898/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11 9:41am

Comment

@arnana54, welcome. Carcinoid tumors are slow growing neuroendocrine tumors. If they spread it is most typically...

https://connect.mayoclinic.org/comment/794083/

Discussion: Carcinoid Syndrome: Can it spread to the head?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8, 2023

Comment

Do any of you have pain with NET liver metastasis? I’ve been living with them for...

https://connect.mayoclinic.org/comment/937378/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2023

Comment

After 2 yrs of intermittent diarrhea, I was diagnosed with NET around Dec 1. It probably...

https://connect.mayoclinic.org/comment/1075079/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26 11:51am

Comment

I had my first surgery 8 months ago. My Oncologist was busy so I spoke to...

https://connect.mayoclinic.org/comment/787564/

Discussion: Carcinoid tumor of the appendix.PET scan results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2022

Comment

My dear friend has had the 4 PRRT. She was ready to quit after 3 because...

https://connect.mayoclinic.org/comment/732819/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 31, 2022

Comment

My dad has high grade NEC primary pancreas with liver mets. Showed progression on carbo/etopo and...

https://connect.mayoclinic.org/comment/866565/

Discussion: Immunotherapy (Ipilimumab & Nivolumab) for NETs: Any experiences?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

Comment

Hi! Thank you for sending the article, this is the one I had read and found...

https://connect.mayoclinic.org/comment/948561/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16, 2023

Comment

I never got the second vaccines. I’m doing ok. Lately being getting a lot of abdominal...

https://connect.mayoclinic.org/comment/951591/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 21, 2023

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