Neuroendocrine Tumors (NETs) Support Group

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Comment

On a Thursday a MRI on my prostrate showed suspicious cancer in the small intestine my...

https://connect.mayoclinic.org/comment/750473/

Discussion: Just got the news… stage 2 Carcinoid tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2022

Comment

Hi, I was recently diagnosed with, carcinoid syndrome, the tumors (NET) started in my small intestine...

https://connect.mayoclinic.org/comment/815553/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22, 2023

Comment

Here is an example as to why a NET specialist is necessary. My husband had an...

https://connect.mayoclinic.org/comment/917235/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2023

Comment

HI, I'm new to this site. In 2016 I had a bowell blockage that turned out...

https://connect.mayoclinic.org/comment/748393/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2022

Comment

My first tumor was in the small intestine (2014) and successfully removed. The second tumor was...

https://connect.mayoclinic.org/comment/802787/

Discussion: What's your NETs treatment and surveillance protocol?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28, 2023

Comment

I had surgery five years ago for nets in my small intestine which had spread into...

https://connect.mayoclinic.org/comment/217318/

Discussion: Embolization

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2019

Comment

Hi Kristy. I’ve only had mild flushing that lasts less than an hour. I haven’t taken...

https://connect.mayoclinic.org/comment/766985/

Discussion: My first sudden facial flush since NETs surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 29, 2022

Comment

@stevestenberg31 he did last week! Unfortunately not enough uptake of the tracer so PRRT is not...

https://connect.mayoclinic.org/comment/824943/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12, 2023

Comment

I was dx in may with net in small intestine tumor was removed but pep scan...

https://connect.mayoclinic.org/comment/758557/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2022

Comment

@vinnie694: to Vinnie and others on Lutathera PRRT infusions for NET tumor progression! I had Lutathera...

https://connect.mayoclinic.org/comment/1284269/

Discussion: NET in the jejunum spread to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: 3 days ago

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