Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi there Vinnie, I was recently diagnosed with the same, metastasized to liver. Did you have...

https://connect.mayoclinic.org/comment/903584/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2023

Comment

I am Small Intestine primary with Liver metastases… Grade 1; Stage 4. Every person with NET...

https://connect.mayoclinic.org/comment/922667/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2023

Comment

Thank you so much for the responses! I have been out of pocket and just now...

https://connect.mayoclinic.org/comment/167648/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2017

Comment

Hello @stevestenberg31, I would like to join Colleen, @colleenyoung, in welcoming you to the NETs discussion...

https://connect.mayoclinic.org/comment/829489/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

Comment

I think we are all given a variety of answers depending on? (not sure what), but...

https://connect.mayoclinic.org/comment/952689/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

Comment

Same here. Had colon cancer and had all my large intestine removed 3 yrs ago now...

https://connect.mayoclinic.org/comment/232851/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Feb 6, 2019

Comment

My primary NET was in the small intestine lining—did not show up in any scans. I...

https://connect.mayoclinic.org/comment/918263/

Discussion: Thank you for your words of encouragement on this journey! Now ???

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 24, 2023

Comment

Hi! Thank you for sending the article, this is the one I had read and found...

https://connect.mayoclinic.org/comment/948561/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16, 2023

Comment

Hello All I too have Neuroendocrine carcinoma that started in my small intestine and metastatic to...

https://connect.mayoclinic.org/comment/797748/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

Comment

UPDATE: On January 28 I had surgery. 27cm of the small intestine was removed and 15cm...

https://connect.mayoclinic.org/comment/329142/

Discussion: Small bowel NET and colon cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2021

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