Neuroendocrine Tumors (NETs) Support Group

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Comment

Lots of information about these tests on the internet. My surgeons and Oncologist go straight to...

https://connect.mayoclinic.org/comment/1256144/

Discussion: Diagnosing small bowel NETs with carcinoid syndrome

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12, 2025

Comment

I had colon cancer when I was 38 and they did a complete procto collectomy. The...

https://connect.mayoclinic.org/comment/1036092/

Discussion: Small bowel NET and colon cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2024

Comment

i have half of my colon removed and my small intestine removed the only problem i...

https://connect.mayoclinic.org/comment/1251259/

Discussion: Anyone dealing with Carcinoid NETs with Diabetes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5, 2025

Comment

@zalda, I'd like to add my welcome. I'm glad that fellow NETs members like @mimisayhi and...

https://connect.mayoclinic.org/comment/1026156/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2024

Comment

Did the same thing come back in 2024? How are you doing now? I go for...

https://connect.mayoclinic.org/comment/1350366/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2025

Comment

Low fibre diet was advised due to my small intestine net causing a possible bowel obstruction....

https://connect.mayoclinic.org/comment/1050410/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2024

Comment

They aren't bad for me at all! They tell you to drink lots of fluids after...

https://connect.mayoclinic.org/comment/897671/

Discussion: How long do I wait between injections and PET scans.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2023

Comment

My surgery at Mayo in Jax is the 1st week in Nov where they will remove...

https://connect.mayoclinic.org/comment/764336/

Discussion: Just got the news… stage 2 Carcinoid tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2022

Comment

Hi, my wife will be meeting with the doctor tomorrow regarding NETS metastasizing in the small...

https://connect.mayoclinic.org/comment/1528904/

Discussion: Started PRRT treatment: Anyone experience tumor markers increasing?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17 9:42am

Comment

Have they done a colonoscopy to see if there are NETs hanging out in the small...

https://connect.mayoclinic.org/comment/1484167/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16 5:33pm

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