Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi billyfeet, I had two NETs on the tail of my pancreas both over 2 cms....

https://connect.mayoclinic.org/comment/842530/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 13, 2023

Comment

Hello @gneiss50 I appreciate you sharing your journey with NETs. Many of us with NETs share...

https://connect.mayoclinic.org/comment/758993/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 9, 2022

Comment

Sorry for the delay in responding but I had hernia repair surgery and still have nausea,...

https://connect.mayoclinic.org/comment/705196/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2022

Comment

@cindypat1 Let's see what happens in May. Keep positive thoughts. A grade 2 isn't the fastest...

https://connect.mayoclinic.org/comment/1518109/

Discussion: New spots showing up

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2 6:10pm

Comment

@mmar2025: My PRRT was because the latest MRI showed 40% tumor progression from the 2021 diagnosis...

https://connect.mayoclinic.org/comment/1502103/

Discussion: Neuroendocrine Pancreatic Tumors with KIT Missense Variant Exon 10 GOF

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9 8:46pm

Comment

In March 2025 I was a healthy, active, 58 year old woman who hiked, biked, went...

https://connect.mayoclinic.org/comment/1480387/

Discussion: What does the future look like for a stage 4 NET patient?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12 10:13am

Comment

Hello! I have been diagnosed with pNET similarly (15×4.9×16cm) at the same time as endometrial cancer...

https://connect.mayoclinic.org/comment/1429987/

Discussion: Treatment options for a Mixed Adenoneuroendocrine Carcinoma (MiNEN)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2025

Comment

Yes, they saw the liver metastases on day 1. In fact they ruled out surgery at...

https://connect.mayoclinic.org/comment/1352512/

Discussion: Insulinoma and back pain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2025

Comment

The doctors didn't say anything about veins, but since that part of the pancreas shares blood...

https://connect.mayoclinic.org/comment/1321687/

Discussion: PNET in Tail of Pancreas, Portal and Splenic Veins

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2025

Comment

@drkarasheed, you may wish to join these relevant discussions: - Pancreatic Cancer: Anyone have liver metastasis...

https://connect.mayoclinic.org/comment/1304347/

Discussion: I’m living with Pancreatic Neuroendocrine Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14, 2025

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