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Discussions (26)
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Comment
Welcome, @lchaney1951. I moved your question to the Neuroendocrine Tumors (NETs) support group here: https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/ where...
https://connect.mayoclinic.org/comment/1022343/
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Discussion:
Carcinoid tumor right middle lobe.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 25, 2024
Comment
What I did was to do a deep dive into the process. First I set my...
https://connect.mayoclinic.org/comment/1000033/
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Discussion:
Possible NET: Waiting for the endo appointment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 19, 2024
Comment
Hi, I had two very small typical carcinoids removed Nov. 21 They took my entire lower...
https://connect.mayoclinic.org/comment/989821/
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Discussion:
Questions I should ask before surgery for Lung NETs?
Support Group:
Lung Cancer
Posted: Jan 1, 2024
Comment
The doctor said the typical carcinoids have nothing to do with my colon cancer. I had...
https://connect.mayoclinic.org/comment/976777/
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Discussion:
Anyone had surgery to remove typical carcinoids of the lung?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 7, 2023
Comment
Hi, I was diagnosed with carcinoid tumor in my lower left lung, after ct scans, bronchoscopy...
https://connect.mayoclinic.org/comment/975118/
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Discussion:
Anyone with carcinoid tumors in lung and stomach?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 4, 2023
Comment
@mcohan Most doctors, even radiologists, pulmonologists and oncologists haven't even heard of DIPNECH. I recently went...
https://connect.mayoclinic.org/comment/965599/
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Discussion:
Anyone had surgery to remove typical carcinoids of the lung?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 16, 2023
Comment
@nana120 I wasn't told of any dietary restrictions when I started my octreotide injections, but maybe...
https://connect.mayoclinic.org/comment/937831/
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Discussion:
Updating about My Lanreotide Injections & CT Scan
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 28, 2023
Comment
The carcinoid heart disease caused a lot of swelling to the point it was putting pressure...
https://connect.mayoclinic.org/comment/911346/
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Discussion:
Has anyone had NETs metastasized to heart?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 11, 2023
Comment
I get my injections every 4 weeks. I have had 4 and will do my first...
https://connect.mayoclinic.org/comment/896537/
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Discussion:
How long do I wait between injections and PET scans.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 16, 2023
Comment
Hi Mike @mikecincy Sorry to hear you've joined the NETs club. It looks like you're doing...
https://connect.mayoclinic.org/comment/885633/
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Discussion:
NET found by colonoscopy. What to expect and how should I approach
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 26, 2023
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