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221 total results
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Discussions (14)
Comments (207)
Comment
Yes, please get a second opinion from a NETs multidisciplinary team familiar with DIPNECH before your...
https://connect.mayoclinic.org/comment/1208016/
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Discussion:
Diagnosed with DIPNECH yesterday!
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 10 5:26am
Comment
@grec, it is scary having a rare disorder, especially when active surveillance is the presecribed treatment....
https://connect.mayoclinic.org/comment/1010744/
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Discussion:
Neuroendocrine cells in Breast and Lungs DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 6, 2024
Comment
I do actually go to Mayo-pulmonologist. He said Dipnech is a label that is hard to...
https://connect.mayoclinic.org/comment/846032/
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Discussion:
What do I need to know about NETS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 19, 2023
Comment
Thank you for reply, I don't have a net's team, I rely on my thoracic surgeon...
https://connect.mayoclinic.org/comment/1142739/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 17, 2024
Comment
Hi @bcraft. I'm new to this site too and what brought me here was a search...
https://connect.mayoclinic.org/comment/838450/
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Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 5, 2023
Comment
Rona I appreciate your reply. I will be getting my baseline scans and bloodwork in mid...
https://connect.mayoclinic.org/comment/1275395/
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Discussion:
Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 6 9:05am
Comment
Hi tatteesmom3, are you seeing a NETS (neuroendocrine tumor) multidisiciplinary team or just a local oncologist...
https://connect.mayoclinic.org/comment/844936/
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Discussion:
What do I need to know about NETS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 18, 2023
Comment
Yes, the tumor I had ablated was malignant (typical carcinoid). It was biopsied first. The microwave...
https://connect.mayoclinic.org/comment/1208685/
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Discussion:
Diagnosed with DIPNECH yesterday!
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 10 10:59pm
Comment
I have DIPNECH, also had my right middle lobe removed in October 2023. At this point,...
https://connect.mayoclinic.org/comment/1244351/
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Discussion:
DIPNECH diagnosis. Has anyone had radiation?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 24 8:29am
Comment
Doctor recommended another test before making the surgery decision. A Netscan. We'll see what that indicates...
https://connect.mayoclinic.org/comment/660238/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 6, 2021
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