Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello @kdubbs I see that @californiazebra and @jlsgt have already introduced themselves to you and shared...

https://connect.mayoclinic.org/comment/1392077/

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2025

Comment

Hi @breck You’ve been through a lot. Sorry to hear they did not get it all....

https://connect.mayoclinic.org/comment/1169807/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

Comment

@grec, it is scary having a rare disorder, especially when active surveillance is the presecribed treatment....

https://connect.mayoclinic.org/comment/1010744/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2024

Comment

If anyone out there can recommend a Dr. in the Florida area that is very familiar...

https://connect.mayoclinic.org/comment/965239/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 15, 2023

Comment

Hi @jan355 I'm so sorry to hear about your oxygen issues and for so many years....

https://connect.mayoclinic.org/comment/1220927/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 24, 2025

Comment

Had carcinoid tumor removed from lung last year, stage 1 cancer, lymph nodes good. Prior to...

https://connect.mayoclinic.org/comment/844635/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17, 2023

Comment

Oh, I also suggest you hook up with a NETs specialty team (likely at a university...

https://connect.mayoclinic.org/comment/1391742/

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2025

Comment

I had my middle right lobe and a part of top lobe removed in 2018, pathology...

https://connect.mayoclinic.org/comment/1287231/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2025

Comment

I too appreciate being able to read of people's experiences, I live in Australia and I...

https://connect.mayoclinic.org/comment/1223283/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2025

Comment

Yes, please get a second opinion from a NETs multidisciplinary team familiar with DIPNECH before your...

https://connect.mayoclinic.org/comment/1208016/

Discussion: Diagnosed with DIPNECH yesterday!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2025

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