Neuroendocrine Tumors (NETs) Support Group

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To @hopeful33250 Many thanks - I offer the following responses: 1. We have reviewed the C.F.C....

https://connect.mayoclinic.org/comment/745158/

Discussion: Recommendation for Seattle Cancer Care Alliance MDs Treating NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 3, 2022

Comment

Many thanks for your response. I offer the following brief summary of Sharon's NET history. 1....

https://connect.mayoclinic.org/comment/744920/

Discussion: Recommendation for Seattle Cancer Care Alliance MDs Treating NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 3, 2022

Comment

My dear friend has had the 4 PRRT. She was ready to quit after 3 because...

https://connect.mayoclinic.org/comment/732819/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 31, 2022

Comment

Hi @tracyfurtiscaudle In August you posted about your high Chromogranin A level and you were trying...

https://connect.mayoclinic.org/comment/643406/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2021

Comment

What’s POTS? I’m still being observed for NETs because of high Chromogranin A levels. I’ve had...

https://connect.mayoclinic.org/comment/634707/

Discussion: Pancreastatin level at 1500

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2021

Comment

Hello @tracyfurtiscaudle and welcome to Mayo Clinic Connect. You have certainly done a lot of research...

https://connect.mayoclinic.org/comment/624927/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 10, 2021

Comment

Thank you, Tracy! Wow - 1600! My last level was in the 500s. However, I just...

https://connect.mayoclinic.org/comment/624706/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 9, 2021

Comment

@dbmenger, What great news that the Gallium scan showed no new tumors! I have had three...

https://connect.mayoclinic.org/comment/610100/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2021

Comment

Teresa, Thanks! He ordered a couple of repeat CT scans, had many of my previous images...

https://connect.mayoclinic.org/comment/271263/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2019

Comment

Hello Ben, (@benr) and welcome to Mayo Connect. I'm so glad that you posted about your...

https://connect.mayoclinic.org/comment/255396/

Discussion: Pancreatic NF-NET stable since 2005 - surgery or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2019

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