Neuroendocrine Tumors (NETs) Support Group

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Comment

Teresa: My wife Sharon has recently had a C/T which showed additional lesions in the liver...

https://connect.mayoclinic.org/comment/800327/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2023

Comment

I get tested for Chromogranin every 4 weeks. My last result was around 1000. It had...

https://connect.mayoclinic.org/comment/793083/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2023

Comment

12/01/2022 Update for Sharon: Her recent Chromogranin level has spiked from the low 100's to 143....

https://connect.mayoclinic.org/comment/779552/

Discussion: Recommendation for Seattle Cancer Care Alliance MDs Treating NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 1, 2022

Comment

Hello @reallywells, I'm glad that you posted your question about your Chromogranin A test. I can...

https://connect.mayoclinic.org/comment/766811/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 29, 2022

Comment

ive had intermittent diarrhea and stomach pain for two years dr did chromogrnin a test that...

https://connect.mayoclinic.org/comment/762893/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2022

Comment

Hello @casualsuman. I'd like to join @colleenyoung in welcoming you to Connect. I've had surgeries for...

https://connect.mayoclinic.org/comment/760717/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 13, 2022

Comment

Hi Mark, regarding your question about the Chromogranin A (CGA) test, I have found some information,...

https://connect.mayoclinic.org/comment/745379/

Discussion: Recommendation for Seattle Cancer Care Alliance MDs Treating NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 4, 2022

Comment

I am being evaluated for a host of symptoms...including flushing, spiking BP that is episodic, fast...

https://connect.mayoclinic.org/comment/673460/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2022

Comment

Hi everyone, I am newly diagnosed with a pancreatic NET, 11 cm in the body &...

https://connect.mayoclinic.org/comment/664794/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2021

Comment

My symptoms have lessened with a restricted diet-low histamine diet & gluten-free. Also, I continue to...

https://connect.mayoclinic.org/comment/643483/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2021

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