Neuroendocrine Tumors (NETs) Support Group

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Hello @tracyfurtiscaudle and welcome to Mayo Clinic Connect. You have certainly done a lot of research...

https://connect.mayoclinic.org/comment/624927/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 10, 2021

Comment

Thank you, Tracy! Wow - 1600! My last level was in the 500s. However, I just...

https://connect.mayoclinic.org/comment/624706/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 9, 2021

Comment

@dbmenger, What great news that the Gallium scan showed no new tumors! I have had three...

https://connect.mayoclinic.org/comment/610100/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2021

Comment

Getting ready for my first PRRT treatment in August for stage IV primary gastric tumor with...

https://connect.mayoclinic.org/comment/1358080/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2025

Comment

That will definitely have an impact on the chromogranin test results. Because of that, many net...

https://connect.mayoclinic.org/comment/1331954/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2025

Comment

A high chromogranin A can mean a lot of things. It can be high because of...

https://connect.mayoclinic.org/comment/1260836/

Discussion: Cromogranina A

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2025

Comment

husband has been getting lenreotide every 28 days for 2 years. doesn't like the injection tho...

https://connect.mayoclinic.org/comment/1199704/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2024

Comment

I took a deep breath and asked for a second opinion when the 2022 results of...

https://connect.mayoclinic.org/comment/1185590/

Discussion: What causes differences in reading of CAT Scan and MRI imaging?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 6, 2024

Comment

Teresa, Thanks! He ordered a couple of repeat CT scans, had many of my previous images...

https://connect.mayoclinic.org/comment/271263/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2019

Comment

Hello Ben, (@benr) and welcome to Mayo Connect. I'm so glad that you posted about your...

https://connect.mayoclinic.org/comment/255396/

Discussion: Pancreatic NF-NET stable since 2005 - surgery or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2019

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