Neuroendocrine Tumors (NETs) Support Group

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Comment

Here is an example as to why a NET specialist is necessary. My husband had an...

https://connect.mayoclinic.org/comment/917235/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2023

Comment

My first tumor was in the small intestine (2014) and successfully removed. The second tumor was...

https://connect.mayoclinic.org/comment/802787/

Discussion: What's your NETs treatment and surveillance protocol?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28, 2023

Comment

I had surgery five years ago for nets in my small intestine which had spread into...

https://connect.mayoclinic.org/comment/217318/

Discussion: Embolization

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2019

Comment

Hi Kristy. I’ve only had mild flushing that lasts less than an hour. I haven’t taken...

https://connect.mayoclinic.org/comment/766985/

Discussion: My first sudden facial flush since NETs surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 29, 2022

Comment

@stevestenberg31 he did last week! Unfortunately not enough uptake of the tracer so PRRT is not...

https://connect.mayoclinic.org/comment/824943/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12, 2023

Comment

I was dx in may with net in small intestine tumor was removed but pep scan...

https://connect.mayoclinic.org/comment/758557/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2022

Comment

I had net tumor on small intestine was removed with 3ft of intestine on 5/22, looks...

https://connect.mayoclinic.org/comment/753325/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2022

Comment

Dianamontsno your question is relative. It depends on your symptoms. I’m no MD, but will share...

https://connect.mayoclinic.org/comment/812932/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17, 2023

Comment

@Kathleenandbob: Thank you for giving me realistic hope. I’m only into 1yr of 28day shots, but...

https://connect.mayoclinic.org/comment/970018/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2023

Comment

Hello. Anyone out there diagnosed with grade one tumor of small intestine? I had section of...

https://connect.mayoclinic.org/comment/813197/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17, 2023

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