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Neuroendocrine Tumors (NETs) Support Group

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Discussion
Small bowel NET and colon cancer
I am 51 and had my first colonoscopy. One polyp with cancer was discovered and removed. The standard practice it to conduct a CT scan...
Last active: Mar 19, 2024
Discussion
How rare is it???
I have stomach nets, sibo (small intestinal bacterial overgrowth), Autoimmune Atrophic gastritis and Stomach nets. I’m currently on the wait and watch protocol for the...
Last active: May 8, 2025
Discussion
S4, G2 NETS in mesentery. Declined Exploratory Surgery
I was diagnosed with S4, G2 NETs in my mesentery. Suspected start in intestines but not definitive. After discussion with surgeon who recommended looking and...
Last active: Nov 23, 2025
Discussion
Cu-64 Dotatate PET results show no malignancy. What’s next?
Hi all,I was diagnosed six weeks ago with NET after a small bowel blockage. NG tube and a ton of pain meds relieved my symptoms...
Last active: Apr 17, 2025
Discussion
When to Stop Seeking out Surgical Drs...
Hello, I was originally diagnosed with appendix cancer in 2016, goblet cell carcinoma with some carcinoid aspects. I had a debulking and HIPEC and 12...
Last active: Apr 17, 2024
Discussion
Newly diagnosed - neuroendocrine tumor in intestines
on routine ct scan found a small abdominal mass. wasn't clear where it was originating from . went to gyn oncology. finally decided it wasn't...
Last active: Feb 17, 2025
Discussion
Still have symptoms after surgery
Hi, my name is Mikhail, im from Moscow, Russia. I have had NET of small incestine, surgery in july, 2023. G1, ki67-2%, pT1NOMO. Need to...
Last active: Dec 29, 2024
Discussion
Long Time Survivor With Concerns re Metastasis
I had surgery at Jacksonville Mayo 12 years ago to remove a section of my upper intestine and a pile of tumors in my abdomen....
Last active: Oct 5, 2023
Discussion
Neuroendocrine cells in Breast and Lungs DIPNECH
I was diagnosed with DIPNECH at National Jewish Health 3/23. Two months later, I had a lumpectomy on my breast. The pathology came back with...
Last active: Sep 16, 2024
Discussion
Recurrence of Neuroendocrine Tumor
Hi anyone with NETS recurrence? I had laparoscopy surgery in January 2024 to remove a tumor from my small intestines, and several sounding lymph nodes...
Last active: Mar 11, 2025