420 total results
Comment
My husband also has one in the small intestine that metastasized to the liver & spine,...
https://connect.mayoclinic.org/comment/885632/
Comment
Hi! I am also getting 4th mo SamotulineDepot injections due to small intestine NET primary with...
Comment
TY. Interesting my oncologist didn't comment on replacing my liver as I have a similar situation...
Discussion
Diagnosing small bowel NETs with carcinoid syndrome
I have 2 questions about diagnostic tests. 1. Is oral barium contrast safe with a suspected or possible partial small intestinal obstruction? I'm concerned the...
Discussion
How many doctors did you see to get to your NETS diagnosis?
I've had the NETs tumor for a long time and saw many doctors before diagnosis. My journey lead me down this road: 2013 Admitted to...
Discussion
Small bowel NET and colon cancer
I am 51 and had my first colonoscopy. One polyp with cancer was discovered and removed. The standard practice it to conduct a CT scan...
Discussion
How rare is it???
I have stomach nets, sibo (small intestinal bacterial overgrowth), Autoimmune Atrophic gastritis and Stomach nets. I’m currently on the wait and watch protocol for the...
Discussion
S4, G2 NETS in mesentery. Declined Exploratory Surgery
I was diagnosed with S4, G2 NETs in my mesentery. Suspected start in intestines but not definitive. After discussion with surgeon who recommended looking and...
Discussion
Cu-64 Dotatate PET results show no malignancy. What’s next?
Hi all,I was diagnosed six weeks ago with NET after a small bowel blockage. NG tube and a ton of pain meds relieved my symptoms...
Discussion
When to Stop Seeking out Surgical Drs...
Hello, I was originally diagnosed with appendix cancer in 2016, goblet cell carcinoma with some carcinoid aspects. I had a debulking and HIPEC and 12...
Discussion
Recurrence of Neuroendocrine Tumor
Hi anyone with NETS recurrence? I had laparoscopy surgery in January 2024 to remove a tumor from my small intestines, and several sounding lymph nodes...
Discussion
Newly diagnosed - neuroendocrine tumor in intestines
on routine ct scan found a small abdominal mass. wasn't clear where it was originating from . went to gyn oncology. finally decided it wasn't...
Discussion
Still have symptoms after surgery
Hi, my name is Mikhail, im from Moscow, Russia. I have had NET of small incestine, surgery in july, 2023. G1, ki67-2%, pT1NOMO. Need to...
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