Neuroendocrine Tumors (NETs) Support Group

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Comment

Dear stevestenberg31, I have NET in pancreas( debulked) with liver metastases. Had 2 Lan injections with...

https://connect.mayoclinic.org/comment/846399/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2023

Comment

I was diagnosed March 2022 stage 4 grade 2 18%, primary tumour on the tail of...

https://connect.mayoclinic.org/comment/1049788/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2024

Comment

I have been diagnosed with pNET in December 2022. Grade 3 (Ki=18) with liver metastases (Stage4)....

https://connect.mayoclinic.org/comment/1035345/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2024

Comment

Hello, sophiarose! I have pancreatic NET with liver metastases. My oncologist suggested Ga68 dotatate PET scan...

https://connect.mayoclinic.org/comment/1024494/

Discussion: 68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2024

Comment

Has anyone been advised to use a celiac plexus nerve block for back and upper abdominal...

https://connect.mayoclinic.org/comment/1019957/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Feb 21, 2024

Comment

I have a 3 cm tumor near the tail of my pancreas, and “too numerous to...

https://connect.mayoclinic.org/comment/1015671/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2024

Comment

Hello, ginnym3! I went to debulking surgery for a large pancreatic tumour (20×16 cm) with liver...

https://connect.mayoclinic.org/comment/966535/

Discussion: Any tips about Cytoreductive, debulking Surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 17, 2023

Comment

You may find this recent study helpful: https://pubmed.ncbi.nlm.nih.gov/36260828/ My wife has a large grade 2 pancreatic...

https://connect.mayoclinic.org/comment/933065/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

Comment

In partial response to one of your latter questions. I am on Octreotide or Sandostatin as...

https://connect.mayoclinic.org/comment/896094/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2023

Comment

@keisham808 - I had a large mass in the pancreas, that was discovered on a CT...

https://connect.mayoclinic.org/comment/865736/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24, 2023

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