Neuroendocrine Tumors (NETs) Support Group

We are looking for the best diet or food suggestions for after liver embolization. There is no nausea but still very weak. Monthly lanreotide shots...

Has anyone had experience with a Liver Transplant that has Neuroendocrine NET? My wife after chemo, surgery, PRRT, etc was suggested my our medical team...

Hello I am new to the site. My 74 y/o husband is diagnosed with stage 4 gastric carcinoid tumor transverse colon which was partially resected...

Hi, I'm Kate. Age 49. I was diagnosed with Merkel Cell 4/6/22. Lesion on chest that spread near collarbone. Had surgery and multiple imaging showed...

Has anyone had a large NET in the liver measuring 6 cm or more? What was the recommended treatment?

I have received Samotuline Depot injections every 28 days for a year. I have avoided Serotonin in my diet, but do I also need to...

I've been involved in the Mayo forum for a few years now, read a lot of great stories of improvement and life living with NET....

My husband has small bowel Neuroendocrine cancer that had metastasized to liver, lymph nodes,and bones he had surgery to remove primary tumor in small bowel,...

Just a up date on my journey of net been on my shots octretide for two yrs. had four treatment of prrt, not going very...

Hello Everyone I hope ALL is well today. It’s been a long time since I’ve been on here. I’ve been through a lot health wise...