Neuroendocrine Tumors (NETs) Support Group

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Comment

Good plan to see a NETs team. DIPNECH is rare. Latest data I’ve read is 300...

https://connect.mayoclinic.org/comment/1108887/

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2024

Comment

@gram26 Hello Jane and welcome to the NETs support group on Mayo Connect. I so appreciated...

https://connect.mayoclinic.org/comment/881787/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

Comment

@mlbschuler I am so excited to hear you are seeing Robert Ramirez! He seems the most...

https://connect.mayoclinic.org/comment/1012065/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2024

Comment

Slow growing is good! How large is the largest tumor? It makes me wonder if you...

https://connect.mayoclinic.org/comment/1081836/

Discussion: Multiple bilateral neuroendocrine lung tumors grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2024

Comment

Hi @jan355 I'm so sorry to hear about your oxygen issues and for so many years....

https://connect.mayoclinic.org/comment/1220927/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 24 10:48pm

Comment

If anyone out there can recommend a Dr. in the Florida area that is very familiar...

https://connect.mayoclinic.org/comment/965239/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 15, 2023

Comment

I had my middle right lobe and a part of top lobe removed in 2018, pathology...

https://connect.mayoclinic.org/comment/1287231/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22 1:54am

Comment

Had carcinoid tumor removed from lung last year, stage 1 cancer, lymph nodes good. Prior to...

https://connect.mayoclinic.org/comment/844635/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17, 2023

Comment

Hi @breck You’ve been through a lot. Sorry to hear they did not get it all....

https://connect.mayoclinic.org/comment/1169807/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

Comment

@grec, it is scary having a rare disorder, especially when active surveillance is the presecribed treatment....

https://connect.mayoclinic.org/comment/1010744/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2024

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