Neuroendocrine Tumors (NETs) Support Group

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Comment

@terlato I was also diagnosed with POTS my recent emergency laparoscopy showed intestines adhesions and more...

https://connect.mayoclinic.org/comment/797793/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

Comment

Many thanks for your concise response - I am posting on behalf of my wife Sharon:...

https://connect.mayoclinic.org/comment/792326/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2023

Comment

Hi, in case it's of interest, the following describes my recent NET experience. Following a blockage,...

https://connect.mayoclinic.org/comment/782928/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2022

Comment

Hi @casualsuman and @sanjaykumar1. It looks like you may have created 2 accounts - Perhaps son...

https://connect.mayoclinic.org/comment/761776/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16, 2022

Comment

You asked about the best test. A blood test can measure chromogranin A (CgA) levels. It...

https://connect.mayoclinic.org/comment/753409/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2022

Comment

To @hopeful33250 Many thanks - I offer the following responses: 1. We have reviewed the C.F.C....

https://connect.mayoclinic.org/comment/745158/

Discussion: Recommendation for Seattle Cancer Care Alliance MDs Treating NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 3, 2022

Comment

Many thanks for your response. I offer the following brief summary of Sharon's NET history. 1....

https://connect.mayoclinic.org/comment/744920/

Discussion: Recommendation for Seattle Cancer Care Alliance MDs Treating NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 3, 2022

Comment

My dear friend has had the 4 PRRT. She was ready to quit after 3 because...

https://connect.mayoclinic.org/comment/732819/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 31, 2022

Comment

Hi @tracyfurtiscaudle In August you posted about your high Chromogranin A level and you were trying...

https://connect.mayoclinic.org/comment/643406/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2021

Comment

What’s POTS? I’m still being observed for NETs because of high Chromogranin A levels. I’ve had...

https://connect.mayoclinic.org/comment/634707/

Discussion: Pancreastatin level at 1500

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2021

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