Neuroendocrine Tumors (NETs) Support Group

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Comment

Pippa05, I am so very sorry to hear about your struggles. And I appreciate and can...

https://connect.mayoclinic.org/comment/897706/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2023

Comment

What areas of your body did they scan? Neck to pelvis? A Ga Dotatate PET-CT is...

https://connect.mayoclinic.org/comment/893208/

Discussion: SDHB Positive and Ga-68 Dotatate Scan question.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10, 2023

Comment

I’m tired. No cancer diagnosis. Lots of cancer in my family… mom, aunt, grandma and my...

https://connect.mayoclinic.org/comment/882282/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2023

Comment

A chromogranin level of 1800 is quite high and taking account your blood pressure and a...

https://connect.mayoclinic.org/comment/882106/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

Comment

Hello @peg152 and welcome to Mayo Connect. Your concern is certainly understandable. The strange thing about...

https://connect.mayoclinic.org/comment/880986/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

Comment

I am presently in Japan and will be meeting with my oncologist the day after I...

https://connect.mayoclinic.org/comment/840491/

Discussion: Prostate Cancer with Neuroendocrine involvement found on pathology

Support Group: Prostate Cancer

Posted: Apr 9, 2023

Comment

@amyn1616, I've added your question to the Autoimmune Diseases support group as well as the NETs...

https://connect.mayoclinic.org/comment/831799/

Discussion: Is there a link between Autoimmune & Neuroendocrine conditions?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Comment

Hello Ben, (@benr) and welcome to Mayo Connect. I'm so glad that you posted about your...

https://connect.mayoclinic.org/comment/255396/

Discussion: Pancreatic NF-NET stable since 2005 - surgery or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2019

Comment

I have been ill. Wgt loss. Diarrhea, back pain. Nausea, cramping and my doc did Chromogranin...

https://connect.mayoclinic.org/comment/823464/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2023

Comment

My oncologist is affiliated with a "teaching" university. Follow up tests include Chromogranin testing and other...

https://connect.mayoclinic.org/comment/804687/

Discussion: What's your NETs treatment and surveillance protocol?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

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