Neuroendocrine Tumors (NETs) Support Group

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Comment

I am presently in Japan and will be meeting with my oncologist the day after I...

https://connect.mayoclinic.org/comment/840491/

Discussion: Prostate Cancer with Neuroendocrine involvement found on pathology

Support Group: Prostate Cancer

Posted: Apr 9, 2023

Comment

@amyn1616, I've added your question to the Autoimmune Diseases support group as well as the NETs...

https://connect.mayoclinic.org/comment/831799/

Discussion: Is there a link between Autoimmune & Neuroendocrine conditions?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Comment

I mand hopes et with an oncologist yesterday. My report: Small tumors in pelvic/abdominal region and...

https://connect.mayoclinic.org/comment/812958/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17, 2023

Comment

Hello @kellysg and welcome to the NETs discussion group on Mayo Clinic Connect. I appreciate your...

https://connect.mayoclinic.org/comment/809280/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2023

Comment

My husband has had high chromagranin A for years. They think from neuroendocrine cancer but have...

https://connect.mayoclinic.org/comment/802160/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

Comment

@terlato I was also diagnosed with POTS my recent emergency laparoscopy showed intestines adhesions and more...

https://connect.mayoclinic.org/comment/797793/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

Comment

Many thanks for your concise response - I am posting on behalf of my wife Sharon:...

https://connect.mayoclinic.org/comment/792326/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2023

Comment

Hi, in case it's of interest, the following describes my recent NET experience. Following a blockage,...

https://connect.mayoclinic.org/comment/782928/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2022

Comment

Hi @casualsuman and @sanjaykumar1. It looks like you may have created 2 accounts - Perhaps son...

https://connect.mayoclinic.org/comment/761776/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16, 2022

Comment

You asked about the best test. A blood test can measure chromogranin A (CgA) levels. It...

https://connect.mayoclinic.org/comment/753409/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2022

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