Neuroendocrine Tumors (NETs) Support Group

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Comment

Do any of You had 11C-5-hydroxy-tryptophan PETCT or know if Your facilities offer it. What was...

https://connect.mayoclinic.org/comment/807185/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

Comment

Yes it is. My three large tumors on my pancreas are about half the size in...

https://connect.mayoclinic.org/comment/836328/

Discussion: Anyone dealing with Carcinoid NETs with Diabetes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2023

Comment

The VA said they tested and said they were not related.....I am finished treatment, the VA...

https://connect.mayoclinic.org/comment/284785/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 21, 2019

Comment

Hi, I am reading your posts with interest. I have a 4x3 cm neuroendocrine metastatic tumor...

https://connect.mayoclinic.org/comment/1161774/

Discussion: Any tips about Cytoreductive, debulking Surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23 8:19pm

Comment

I would also recommend you have both types of petscans done. It took 5 years to...

https://connect.mayoclinic.org/comment/932546/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2023

Comment

I’m sorry you’re going through this. My husband had the same surgery except for the liver...

https://connect.mayoclinic.org/comment/992356/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6 9:50am

Comment

Hello @beachboyarkansas and welcome to the NETs support group on Mayo Connect. I really appreciate you...

https://connect.mayoclinic.org/comment/1111157/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24 3:26pm

Comment

Unfortunately, I was not accepted to the trial study (COMPOSE). In addition to neuroendocrine cancer in...

https://connect.mayoclinic.org/comment/839259/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7, 2023

Comment

I have an unknown primary NET maybe intestines It has metastasized to my liver periportal lymph...

https://connect.mayoclinic.org/comment/943430/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2023

Comment

Hello @jhilbish, I'm glad to hear that your husband's liver embolization is over now. Will be...

https://connect.mayoclinic.org/comment/787656/

Discussion: NETs what to eat? What to avoid?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2022

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