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2,244 total results
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Discussions (190)
Comments (2,054)
Comment
A 10 cm tumor was incidentally discovered on CT Scan in the fall of 2016. Was...
https://connect.mayoclinic.org/comment/790795/
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Discussion:
Advanced metastatic paraganglioma diagnosis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 31, 2022
Comment
I was diagnosed with NET in the Liver with multiple spots, and a mass on my...
https://connect.mayoclinic.org/comment/754995/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 28, 2022
Comment
Hi @pamsbass, I had a Pyloric preserving pancreaticoduodenectomy (modified Whipple) liver resection and liver ablation in...
https://connect.mayoclinic.org/comment/1001236/
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Discussion:
Need more information on NET in head of pancreas
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 21, 2024
Comment
Hello, Im Vicki and my story is similar. I started out in lower intestines om 2020...
https://connect.mayoclinic.org/comment/1396371/
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Discussion:
Neuroendocrine Carcinoma with Liver Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: 2 days ago
Comment
Morning! My primary was on my ilieum which metastasized to my liver and pancreas. I was...
https://connect.mayoclinic.org/comment/897949/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 18, 2023
Comment
They call the disease Zebras because no 2 are the same I never had a hot...
https://connect.mayoclinic.org/comment/1196548/
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Discussion:
What does my dentist need to know about my NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 24, 2024
Comment
Don’t forget Lanreotide also causes exhaustion atleast it did for me I have an unknown primary...
https://connect.mayoclinic.org/comment/978236/
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Discussion:
After liver embolization: Looking for the best diet + food suggestions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 10, 2023
Comment
@keisham808 - I had a large mass in the pancreas, that was discovered on a CT...
https://connect.mayoclinic.org/comment/865736/
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Discussion:
Just diagnosed with pancreatic NET stage 1
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 24, 2023
Comment
Been taking Ocreotide for about 18 months 2 shots every 28 days.. stage 4 metastasized to...
https://connect.mayoclinic.org/comment/1196525/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 24, 2024
Comment
I have neuroendrocrine tumors in my liver.six years ago it was near my bowels. Then the...
https://connect.mayoclinic.org/comment/1109539/
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Discussion:
Anyone have side effects after Lanreotide injection?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 21, 2024
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