Neuroendocrine Tumors (NETs) Support Group

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Comment

I think I’m right but maybe not I am in Panama I also have NETS and...

https://connect.mayoclinic.org/comment/1449620/

Discussion: Anyone had positive results from Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2025

Comment

My husband is also a patient at Mayo Phoenix. Have they discussed captem with you? Everolimus...

https://connect.mayoclinic.org/comment/1122814/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2024

Comment

Hello @jennywren8 and welcome to the NETs support group on Mayo Connect. I appreciate your response...

https://connect.mayoclinic.org/comment/1010237/

Discussion: GI NET attached to pancreas supposedly non-producing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2024

Comment

She has a well-differentiated grade 3 PNET that metastases to the liver. There were quite a...

https://connect.mayoclinic.org/comment/934866/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2023

Comment

I had surgery on Feb.1. Distal pancreatectomy, removal of part of the stomach, gallbladder and spleen.,...

https://connect.mayoclinic.org/comment/822921/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 8, 2023

Comment

Hello All I too have Neuroendocrine carcinoma that started in my small intestine and metastatic to...

https://connect.mayoclinic.org/comment/797748/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

Comment

In 2021 I went to the emergency room with severe stomach pain. Thank-God the emergency room...

https://connect.mayoclinic.org/comment/1427968/

Discussion: NETs with Liver metastasis: starting lanreotide injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2025

Comment

We’ve agreed I will have the scan instead of the biopsy. Woohoo. The good news is...

https://connect.mayoclinic.org/comment/879234/

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15, 2023

Comment

Thank you for checking on me. I am having some back pain and sciatic pain. I...

https://connect.mayoclinic.org/comment/834136/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

Comment

Hi Sandi You are a blessed person 19 year. Wow!!!! I was on lanreotide and had...

https://connect.mayoclinic.org/comment/746905/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8, 2022

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