Neuroendocrine Tumors (NETs) Support Group

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On November 25th my Pulmonologist diagnosed me with Neuro-Endoscopic Small Cell lung cancer. About a week...

https://connect.mayoclinic.org/comment/1469727/

Discussion: Anyone have anything to share on Neuroendoscopic SCLC? In hospice

Support Group: Lung Cancer

Posted: Dec 29, 2025

Comment

Hi I recently asked the same question about just getting a liver transplant and my surgeon...

https://connect.mayoclinic.org/comment/952416/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

Comment

I was at Mass general last summer and they seem to employ the ‘let’s watch it...

https://connect.mayoclinic.org/comment/884361/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Comment

Hi Teresa and tsabe2. At this time, I’m not able to provide any input to this...

https://connect.mayoclinic.org/comment/311781/

Discussion: Afinitor - Anyone have pneumonitis as a side effect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 23, 2020

Comment

Thanks very much for your reply. I have been waiting for the Mayo Clinic E-Consult so...

https://connect.mayoclinic.org/comment/1161723/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2024

Comment

First time post here. Briefly, my wife started losing weight and feeling fatigued in the first...

https://connect.mayoclinic.org/comment/866425/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

Comment

I have similar questions and would like to be added to your followers. I particularly want...

https://connect.mayoclinic.org/comment/775875/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

Comment

I’m sure they will help! It might not be easy but you are going to a...

https://connect.mayoclinic.org/comment/1287245/

Discussion: Gastrinomas and Whipple procedure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2025

Comment

Has your team discussed a liver directed therapy such as embolization? There are 3 types: bland,...

https://connect.mayoclinic.org/comment/1197420/

Discussion: Wondering if we are making the right choices in our NET fight.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 26, 2024

Comment

@briana311 I was diagnosed in 8/22, grade 2 pancreatic NET. It has spread primarily to my...

https://connect.mayoclinic.org/comment/1530955/

Discussion: NETs growing despite 3 months of capecitabine and temozolomide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19 7:34pm

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