Neuroendocrine Tumors (NETs) Support Group

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Comment

My blood sugar at one point kept going up and down but changing my diet and...

https://connect.mayoclinic.org/comment/1261777/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19, 2025

Comment

@arleighna - it gets better with time! My first 6 mo I was in bed for...

https://connect.mayoclinic.org/comment/1208482/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2025

Comment

I’d like support last round suggestions, as my wife also had too many tumors to count...

https://connect.mayoclinic.org/comment/874754/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8, 2023

Comment

Hi Teresa, I had been having MRI scans every 4-6 months after removal of the primary...

https://connect.mayoclinic.org/comment/801786/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2023

Comment

Hi, my husband was diagnosed last year with grade 1, stage 4 neuroendocrine tumor. We found...

https://connect.mayoclinic.org/comment/1295489/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3, 2025

Comment

Hi @nana120 I believe your hair loss will stabilize. My hair has really thinned due to...

https://connect.mayoclinic.org/comment/1008942/

Discussion: Anyone have hair loss with lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 3, 2024

Comment

My primary was a tumor wrapped around my small intestine, discovered in 2007. I have been...

https://connect.mayoclinic.org/comment/898391/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2023

Comment

Hello @susan481 and welcome to Mayo Connect. I'm sure your partner appreciates you reaching out for...

https://connect.mayoclinic.org/comment/1293995/

Discussion: Lanreotide side effects: diarrhea constipation, what to do?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2025

Comment

I had explosive diarrhea also not a fun thing to deal with! I get the lanreotide...

https://connect.mayoclinic.org/comment/1287554/

Discussion: Gastrinomas and Whipple procedure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2025

Comment

Husband was diagnosed in Nov. of last year with low grade neuroendocrine carcinoma which started at...

https://connect.mayoclinic.org/comment/941333/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2023

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