Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi. Glad to have friends on the subject. Just had surgery-ilioectemy, lymph nodes were cancerous. New...

https://connect.mayoclinic.org/comment/817446/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2023

Comment

Hello Theresa. Can you tell me how serious a descending colon NET that has metastasized to...

https://connect.mayoclinic.org/comment/792586/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5, 2023

Comment

@lindabees hi my sis hv stage 4 grade 3 PNET ,Liver modules.Captem doesn't work.did etopside and...

https://connect.mayoclinic.org/comment/1410555/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2025

Comment

Wondering How old is your wife? How big and how many tumors? How is the Nets...

https://connect.mayoclinic.org/comment/1197596/

Discussion: Wondering if we are making the right choices in our NET fight.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 26, 2024

Comment

So glad to find this! Had NET surgery small intestine and mesentery in 2015 after diagnosis...

https://connect.mayoclinic.org/comment/827137/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

Comment

I am a patient of Dr Starr's at Mayo Clinic Jacksonville. My NETS were ileum primary...

https://connect.mayoclinic.org/comment/876912/

Discussion: Where can I find a carcinoid syndrome specialist in Florida?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Comment

Good day, Yes, I think this is my case. Mine is 9mm and mean. I am...

https://connect.mayoclinic.org/comment/1350762/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2025

Comment

Sorry, but I have another question, I had surgery (distal) in 2022 and liver lesion in...

https://connect.mayoclinic.org/comment/1312450/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: Archive

Support Group: Pancreatic Cancer

Posted: May 25, 2025

Comment

He had two tumors on his pancreas so they removed his pancreas in 2018. It has...

https://connect.mayoclinic.org/comment/292375/

Discussion: Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2020

Comment

Hello. I wanted to add some information about the testosterone issues you mentioned. My husband was...

https://connect.mayoclinic.org/comment/1385205/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2, 2025

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