Neuroendocrine Tumors (NETs) Support Group

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I also have multifocal lung cancer. I am in Rochester now preparing for my CT scan...

https://connect.mayoclinic.org/comment/232767/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 10, 2018

Comment

Im sorry to hear you are going through that. It is actually my brother. He had...

https://connect.mayoclinic.org/comment/1325183/

Discussion: Anyone have lung NETs lining your pleura?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 11, 2025

Comment

My husband has been fighting this since 2021, he had a tumor removed from his spine...

https://connect.mayoclinic.org/comment/1269480/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2025

Comment

@jessie1990 Is part of it because of homelessness? Rents here are horrible, and many people just...

https://connect.mayoclinic.org/comment/1436661/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2025

Comment

I am a lung cancer survivor. I was lucky my PCP ordered a CT scan just...

https://connect.mayoclinic.org/comment/1062273/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2024

Comment

@jessie1990 No. I do not recall having lymph nodes biopsied when I had my lung biopsy...

https://connect.mayoclinic.org/comment/1430235/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2025

Comment

Thank you for sharing your story. I hope your doctors can find a way to help...

https://connect.mayoclinic.org/comment/1198940/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2024

Comment

@hopeful33250 Thanks for the reply! I guess the Pulmonologist at Mayo presented my case at the...

https://connect.mayoclinic.org/comment/271271/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 1, 2020

Comment

@colleenyoung So far, so good. I have reduced the amount of Creon to 24,000 per meal,...

https://connect.mayoclinic.org/comment/1495278/

Discussion: Anyone have Pancreatic Acinar Cell Carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31 7:39pm

Comment

@guyjeff123 Hello Jeffrey, It sounds like you have had a lot of medical trauma lately. I...

https://connect.mayoclinic.org/comment/1469889/

Discussion: Anyone have anything to share on Neuroendoscopic SCLC? In hospice

Support Group: Lung Cancer

Posted: Dec 29, 2025

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