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Discussions (69)
Comments (699)
Comment
Dear Merry, Thanks for your kind response. I agree that it would be helpful to have...
https://connect.mayoclinic.org/comment/284804/
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Discussion:
I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer
Support Group:
Cancer
Posted: Dec 26, 2019
Comment
Hi @breck Thank you for your response. Sorry this is so scary and you have breathing...
https://connect.mayoclinic.org/comment/1170238/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 8, 2024
Comment
Hi, I'm 67 years old. Have been mis-diagnosed for over 5 years. 2023 Dr. finally walks...
https://connect.mayoclinic.org/comment/1054374/
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Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 20, 2024
Comment
Hi. My Chromagranin A also elevated at 2590, an elevated 5-HIAA and elevated somatostatin level. Octreo...
https://connect.mayoclinic.org/comment/893983/
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Discussion:
High or Fluctuating Chromogranin A Level: What does it mean?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 11, 2023
Comment
@sun56 I was told that mine was calcified and that’s nothing to worry yet fast forward...
https://connect.mayoclinic.org/comment/832085/
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Discussion:
Lung nodule could be slow growing carcinoid: Watch and wait is scary
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 25, 2023
Comment
@susu2- I am so so sorry that your ovarian cancer has metastasized. Nine months is a...
https://connect.mayoclinic.org/comment/232799/
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Discussion:
Facing Cancer Recurrence, PTSD & Acknowledging Mental Health
Support Group:
Cancer: Managing Symptoms
Posted: Jan 7, 2019
Comment
First time here and would appreciate any info from folks with a similiar issue. I had...
https://connect.mayoclinic.org/comment/811885/
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Discussion:
Carcinoid tumor of the appendix.PET scan results
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 15, 2023
Comment
Welcome @tufan, I'm sorry to hear that treatment thus far has not slowed the progression of...
https://connect.mayoclinic.org/comment/801569/
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Discussion:
Neuroendocrine Lung stage 4B with metastasis in liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 25, 2023
Comment
I took immunotherapy I was diagnosed in June of 23 with Merkel cell carcinoma it was...
https://connect.mayoclinic.org/comment/1172429/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 12, 2024
Comment
Hopefully there is someone out there still monitoring this. I have chronic NET that started in...
https://connect.mayoclinic.org/comment/1171106/
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Discussion:
Neuroendocrine Carcinoma with Liver Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 10, 2024
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